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Table 2 Parent characteristics of individual semi-structured interviews with 10 parents and 3 focus groups with 16 parents (n = 5, n = 5, n = 6)

From: Marfan syndrome in childhood: parents’ perspectives of the impact on daily functioning of children, parents and family; a qualitative study

 Interviews NFocus groups N
Gender (male/female)4/67/9
Age parents (range) (years)41 (32–49)39 (32–55)
Parents with MFS (male/female)3/23/4
Living together01
Couples (parents of the same child)24
Total children1924
Children with MFS816
Age children with MFS (range) (years)8 (4–12)8 (2–16)
  1. N number; no missing data