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Table 2 Parent characteristics of individual semi-structured interviews with 10 parents and 3 focus groups with 16 parents (n = 5, n = 5, n = 6)

From: Marfan syndrome in childhood: parents’ perspectives of the impact on daily functioning of children, parents and family; a qualitative study

 

Interviews N

Focus groups N

Gender (male/female)

4/6

7/9

Age parents (range) (years)

41 (32–49)

39 (32–55)

Parents with MFS (male/female)

3/2

3/4

Married

9

15

Divorced

1

0

Living together

0

1

Couples (parents of the same child)

2

4

Total children

19

24

Children with MFS

8

16

Age children with MFS (range) (years)

8 (4–12)

8 (2–16)

  1. N number; no missing data