| n (%) or Median (IQR) |
---|---|
Infant demographics | |
Race/Ethnicity, n (%) | |
 Hispanic | 15 (71) |
 Black non-Hispanic | 2 (10) |
 White non-Hispanic | 3 (14) |
 Asian | 1 (5) |
Gestational age (weeks), median (IQR) if preterm | 31.8 (28.7, 34.5) |
< 32 weeks, n (%) | 9 (43) |
< 28 weeks, n (%) | 2 (9.5) |
Term infants being followed in high risk infant follow up clinic, n (%) | 4 (19) |
Birth weight (grams), median (IQR) | 1750 (1305, 2641) |
Chronologic Age (months), median (IQR) | 8 (7, 13.7) |
Corrected gestational age (months), median (IQR) | 6 (6, 12) |
Length of stay of hospitalization in NICU (index hospitalization), days, median (IQR)a | 83 (31, 135) |
Time from discharge (months), median (IQR) | 6.5 (4.25, 9.5) |
Infants with medical complexityb (Diagnoses list available in Appendix) | Â |
 Complex Chronic Disease (C-CD), n (%) | 14 (67) |
 Non Complex Chronic Disease (NC-CD), n (%) | 7 (33) |
Number of medications used after discharge, median (IQR) | 4 (1, 5) |
Number of medical subspecialists after discharge, median (IQR) | 2 (1.7, 5) |
Using durable medical equipmentc, n (%) | 10 (47) |
 Oxygen | 5 (24) |
 Feeding tube (gastrostomy/jejunostomy) | 7 (33) |
 Tracheostomy/Ventilator dependence | 1 (5) |
Using occupational therapy, n (%) | 9 (43) |
Using physical therapy, n (%) | 7 (33) |
Bayley Scores (if > 6 months), median (IQR) |  |
 Composite Cognitive | 95 (29, 101) |
 Composite Language | 82 (70, 91) |
 Receptive Language (scaled score) | 8 (4, 9.2) |
 Expressive Language (scaled score) | 7 (4.7, 7.2) |
 Composite Motor | 75 (70, 92) |
Fine Motor (scaled score) | 8 (3.5, 8.5) |
 Gross Motor (scaled score) | 4.5 (2.7, 7.2) |
Maternal and family demographics | |
Age (years) at delivery, median (IQR) | 26 (23, 27) |
Parity status, n (%) | Â |
 First child | 9 (43) |
 Siblings | 6 (29) |
 Missing values | 6 (29) |
Primary Language, n (%) | |
 English | 17 (81) |
 Spanish | 4 (19) |
Neighborhood equityd, n (%) | |
 Home zip code in service planning area (SPA) with 3th quartile economic hardship index | 4 (19) |
 Home zip code in service planning area (SPA) with 4th quartile economic hardship index | 9 (43) |
Distance from home zip code to High Risk Infant Follow Up Clinic (miles), median (IQR) | 20.2 (11.2, 27.8) |
 <10 miles, n (%) | 5 (24) |
 ≥10 miles to < 20 miles, n (%) | 4 (19) |
 ≥20 miles, n (%) | 12 (57) |
Medicaid/California Children’s Services, n (%) | 21 (100) |
Receiving income assistance if eligible, n (%) | 7 (33) |
Owning a smartphone or tablet with internet capability, n (%) | 21 (100) |