Table 5 Survey outcomes on support. (n = 753)
Did you or are you planning to object to retention and secondary use? | p-value | ||||
No, I think scientific research is good.c (n = 497, 66.1%) | |||||
Knowledge on current NDBS policy (no, little, medium, full) | 24 (4.8) | 129 (26.0) | 199 (40.0) | 145 (29.2) | 0.023 |
SES (low, medium, high)a | 69 (14.2) | 315 (64.7) | 103 (21.1) | 0.507 | |
Level of education (low, medium, high)b | 5 (1.0) | 191 (38.6) | 299 (60.4) | 0.170 | |
Bad | Somewhat bad | Not bad, not good | Somewhat good | Good | |
What do you think of use of the heel prick card of your child for research that potentially improves public health but does not benefit you child directly? n (%) | 16 (2.1) | 11 (1.5) | 48 (6.4) | 112 (14.9) | 566 (75.2) |
As far as I am concerned, the stored heel prick cards can be used to… | Disagree | Somewhat disagree | Neutral | Somewhat agree | Agree |
…determine how often certain diseases occur here | 39 (5.2) | 12 (1.6) | 36 (4.8) | 98 (13.0) | 568 (75.4) |
…figure out how certain diseases develop | 25 (3.3) | 12 (1.6) | 21 (2.8) | 73 (9.7) | 622 (82.6) |
…allow universities to develop medical tests | 45 (6.0) | 11 (1.5) | 48 (6.4) | 96 (12.7) | 553 (73.4) |
…allow universities and companies together to develop medical tests | 85 (11.3) | 52 (6.9) | 94 (12.5) | 157 (20.8) | 365 (48.5) |
…allow companies to develop medical tests | 183 (24.3) | 94 (12.5) | 112 (14.9) | 112 (14.9) | 252 (33.6) |
…help trace suspects of serious crimes | 243 (32.3) | 48 (6.4) | 92 (12.2) | 78 (10.4) | 292 (38.8) |
…identify victims of fire, natural disaster or kidnapping | 73 (9.7) | 24 (3.2) | 54 (7.2) | 102 (13.5) | 500 (66.4) |
…connect to my personal medical dossier for research into diseases in my family | 86 (11.4) | 24 (3.2) | 72 (9.6) | 93 (12.4) | 478 (63.5) |
…connect to my personal medical dossier for research into diseases in the Dutch population | 151 (20.1) | 54 (7.2) | 85 (11.3) | 112 (14.9) | 351 (46.6) |