Table 3 Survey outcomes on parental information. (n = 747) Statements were scored on a five point scale (strongly disagree – strongly agree)
I would you like to receive information on retention and secondary use… | |||
|---|---|---|---|
when my child’s NDBS is potentially used in secondary research, so I can give permission. (Strongly) agree, n (%) | about the results of the secondary use research project. (Strongly) agree, n (%) | when the storage length changes. (Strongly) agree, n (%) | |
I trust the RIVM-committee to take the right decision on secondary use of NDBS. | |||
(n = 572,76.6%, (strongly) agree) | 347 (60.7) | 426 (74.2) | 400 (69.8) |
(n = 69, 9.2%, (strongly) disagree) | 55 (79.7) | 54 (78.3) | 56 (81.2) |
The transparency of the management of the NDBS is insufficient. | |||
(n = 343,45.9%, (strongly) agree) | 254 (74.1) | 278 (81.0) | 284 (82.8) |
(n = 125, 16.7%, (strongly) disagree) | 61 (48.8) | 84 (66.7) | 73 (57.9) |