Population | Parents/guardians of children (≤18 years of age) with a chronic illness or disability for which the etiology/manifestations are genetic, metabolic or neurologic and specialist pediatric care is required, involving surgical, medical and/or nutritional intervention |
Intervention or exposure | Coping (with or without caregiving complexity) |
Comparator | Quantitative comparison of QoL (outcome) among individuals using different coping strategies or using strategies to different degrees |
Outcome | QoL |
Study characteristics | Peer reviewed, English-language, full text article describing primary study that includes ≥5 participants |