N = 23 | Time 1 (T1, enrollment) Pre-SCP | Time 2 (T2) SCP delivery | Time 3 (T3, follow-up) Post-SCP | T2 – T3 p-value | |||
---|---|---|---|---|---|---|---|
N | % | N | % | N | % | ||
Preferences regarding | |||||||
When to receive SCP:a | |||||||
Before treatment ends | 7 | 30.4 | 11 | 47.8 | 14 | 60.9 | 0.38 |
After treatment ends | 16 | 69.6 | 13 | 56.5 | 12 | 52.2 | >0.99 |
Provider to explain SCP to patient and families: | |||||||
Oncology Nurse | 9 | 34.8 | 6 | 26.1 | 8 | 34.8 | 0.69 |
Oncology Doctor | 18 | 78.3 | 18 | 78.3 | 19 | 82.6 | >0.99 |
Experiences with SCP delivery and use | |||||||
SCP will have a very positive influence on communication with your child’s health care providers | b | 16 | 69.6 | 12 | 52.2 | 0.13 | |
Strongly agree to agree that: | |||||||
Provider used words that I could understand when explaining the SCP | b | 23 | 100 | 22 | 95.7 | >0.99 | |
Provider made sure I understood everything on the SCP | b | 23 | 100 | 22 | 95.6 | >0.99 | |
My provider answered all of my questions | b | 23 | 100 | 21 | 91.3 | 0.50 | |
Provider used medical terms without explaining what they mean | b | 6 | 26.1 | 2 | 8.7 | 0.29 | |
SCP contained all the information about survivorship I need | b | 22 | 95.7 | 22 | 95.7 | > 0.99 | |
I feel concerned about the information I learned in the SCP | b | 2 | 8.7 | 1 | 4.4 | > 0.99 | |
Very satisfied or satisfied with the: | |||||||
Process of receiving the SCP | b | 22 | 95.7 | 22 | 95.7 | >0.99 | |
Layout of the SCP | b | 22 | 95.7 | 22 | 95.7 | >0.99 | |
Page length of the SCP | b | 21 | 91.3 | 22 | 95.7 | >0.99 | |
Content of the SCP | b | 21 | 91.3 | 21 | 91.3 | >0.99 | |
Likelihood of using SCP over next:c | |||||||
6 months | b | 19 | 82.6 | 13 | 56.5 | 0.07 | |
1 year | b | 20 | 87.0 | 15 | 65.2 | 0.13 | |
2–4 years | b | 21 | 91.3 | 17 | 73.9 | 0.22 | |
≥ 5 years | b | 20 | 86.9 | 19 | 82.6 | >0.99 | |
Recommendations regarding SCPs: | |||||||
Strongly recommend that SCPs should be used to other cancer survivors | 15 | 65.2 | 20 | 87.0 | 19 | 82.6 | >0.99 |
Strongly agree SCP will help me talk about health risks to my child in the future | 14 | 60.9 | 13 | 65.5 | 14 | 60.9 | >0.99 |
SCP will help make decisions about your child’s future healthcare | b | 23 | 100 | 23 | 100 | n/a |