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Table 2 Parent preferences and experiences with receiving SCP

From: Survivorship care plan experiences among childhood acute lymphoblastic leukemia patients and their families

N = 23

Time 1 (T1, enrollment)

Pre-SCP

Time 2 (T2)

SCP delivery

Time 3 (T3, follow-up)

Post-SCP

T2 – T3 p-value

N

%

N

%

N

%

Preferences regarding

 When to receive SCP:a

  Before treatment ends

7

30.4

11

47.8

14

60.9

0.38

  After treatment ends

16

69.6

13

56.5

12

52.2

 >0.99

 Provider to explain SCP to patient and families:

  Oncology Nurse

9

34.8

6

26.1

8

34.8

0.69

  Oncology Doctor

18

78.3

18

78.3

19

82.6

>0.99

Experiences with SCP delivery and use

  SCP will have a very positive influence on communication with your child’s health care providers

b

16

69.6

12

52.2

0.13

 Strongly agree to agree that:

  Provider used words that I could understand when explaining the SCP

b

23

100

22

95.7

 >0.99

  Provider made sure I understood everything on the SCP

b

23

100

22

95.6

 >0.99

  My provider answered all of my questions

b

23

100

21

91.3

0.50

  Provider used medical terms without explaining what they mean

b

6

26.1

2

8.7

0.29

  SCP contained all the information about survivorship I need

b

22

95.7

22

95.7

> 0.99

  I feel concerned about the information I learned in the SCP

b

2

8.7

1

4.4

> 0.99

 Very satisfied or satisfied with the:

  Process of receiving the SCP

b

22

95.7

22

95.7

 >0.99

  Layout of the SCP

b

22

95.7

22

95.7

 >0.99

  Page length of the SCP

b

21

91.3

22

95.7

 >0.99

  Content of the SCP

b

21

91.3

21

91.3

 >0.99

 Likelihood of using SCP over next:c

  6 months

b

19

82.6

13

56.5

0.07

  1 year

b

20

87.0

15

65.2

0.13

  2–4 years

b

21

91.3

17

73.9

0.22

  ≥ 5 years

b

20

86.9

19

82.6

 >0.99

Recommendations regarding SCPs:

  Strongly recommend that SCPs should be used to other cancer survivors

15

65.2

20

87.0

19

82.6

 >0.99

  Strongly agree SCP will help me talk about health risks to my child in the future

14

60.9

13

65.5

14

60.9

 >0.99

  SCP will help make decisions about your child’s future healthcare

b

23

100

23

100

n/a

  1. aChoices may add up to more than 100% participants could select multiple responses
  2. bQuestion only asked at T2 and/or T3
  3. cLikely/very likely vs. not/somewhat/moderately likely