Table 5 Caregivers barrier to the disclosure process

My care provider did not teach me how/what to tell child

0.807

I do not know the exact age to disclose

0.723

I don’t know how child will react and how to manage such reactions

0.645

I feel guilty/ashamed for transmitting the infection

0.635

I do not know how to explain sex to child if asked how he/she got infected

0.498

I don’t know how my religious members will think of me

0.768

I may lose my job if others get to know through my child

0.733

I am afraid to lose my social status

0.699

I have witnessed families who face stigma and discrimination because they disclosed.

0.628

Protect the child from depressing information.

0.777

Fear of rejection by the child

0.727

I am afraid the child might not be able to keep the diagnosis a secret leading to social rejection

0.657

My family discouraged me from disclosing

0.778

In the past I tried to disclose but I failed

0.706

My friends discouraged me from disclosing

0.572

My in-laws will distrust me and I will lose my marriage if through child others get to know

0.842

My family will disown me should they hear of my child’s diagnosis

0.642

Disclosure will cause lack of concentration in school

0.779

Disclosure will decrease child’s quality of life

0.456

Child is too young to know or understand

0.753

Disclosing to children before their teen years will not make any difference to the child

0.535