Table 2 Disclosed Child and Caregiver Disclosure Related Experience (n = 24)
Variable | n (%), Mean |
|---|---|
Child’s Age at disclosure (years) | |
6–10 | 1 (4.2) |
11–14 | 9 (37.5) |
>14 | 14 (58.3) |
Mean | 10.4 |
Time frame of disclosure after child’s diagnosis | |
<1 year | 5 (20.8%) |
1–5 years | 10 (41.7%) |
> 5 years | 9 (37.5%) |
Caregiver supported by health provider in disclosing | |
Yes | 16 (66.7) |
No | 8 (33.3) |
Caregiver level of confidence at disclosing | |
Confident | 6 (25.0) |
Somehow confident | 10 (41.7) |
Not at all confident | 8 (33.3) |
Reasons for the disclosurea | |
Child has reached puberty and is of age | 69 (87.3) |
Child increasingly becoming curious about daily medications | 57 (72.2) |
Child inquisitiveness about routine clinic attendance | 56 (70.9) |
Child has started talking about sex and sexual relationship | 54 (68.4) |
My healthcare provider asked me to disclose and offered Support | 59 (74.7) |