Table 2 Primary/secondary outcome measures, measurements and informant for the adolescent and parent intervention
| Â | Measurements | Informant |
|---|---|---|
Primary outcome measures | ||
 Adolescents | ||
  Psychosocial functioning | Child Behavior Checklist (CBCL) and Youth Self Report (YSR) | Parent and adolescent |
  Disease-related coping skills | Op Koers Questionnaire (OKQ) | Adolescent |
 Parents | ||
  Psychosocial functioning | Hospital Anxiety and Depression Scale (HADS) | Parent |
  Disease-related coping skills | Op Koers Questionnaire (OKQ) | Parent |
Secondary outcome measures | ||
 Adolescents | ||
  Self-esteem | Perceived Competence Scale for Adolescents (CBSA) | Adolescent |
  Quality of Life | Pediatric Quality of Like Inventory - self report (PedsQL) | Adolescent |
 Parents | ||
  Impact of the illness on family functioning | Pediatric Quality of Life Inventory - Family Impact Module (PedsQL-FIM) | Parent |
  Parental distress | Distress Thermometer for Parents (DTP) | Parent |
  Social involvement | Inventory Social Involvement (ISI) | Parent |
  Illness cognitions | Illness Cognition Questionnaire for Parents (ISQ) | Parent |