Table 2 Variable Domains
From: The BabySeq project: implementing genomic sequencing in newborns
Variable Domains | Parents | Physicians | |||||
|---|---|---|---|---|---|---|---|
Baseline | Post-Disclosure | 3-Mo | 10-Mo | Baseline | Post-Disclosure | End of Study | |
Attitudes | X | X | X | X | |||
Confidence | X | X | X | X | X | ||
Perceived Utility | X | X | X | X | X | X | |
Genetic Perception | X | X | X | X | |||
Sociodemographics | X | X | |||||
Healthcare Utilization | X | ||||||
Report Utilization | X | ||||||
Information Seeking | X | ||||||
Preparedness & Interest | X | X | |||||
Parent-Child Relationship | X | X | X | X | |||
Personal Distress (Depression/Anxiety) | X | X | X | X | |||
Child-Centered Stress | X | X | |||||
Partner Relationship | X | X | X | X | |||
Perceptions of Child | X | X | X | X | |||
Health Behaviors & Intentions | X | X | X | X | |||
Social Support | X | X | |||||
World View | X | X | X | ||||
Health History | X | ||||||
Trust | X | ||||||
Satisfaction | X | X | X | ||||
Understanding & Recall | X | ||||||