TY - JOUR AU - Marlow, N. PY - 2015 DA - 2015// TI - Keeping up with outcomes for infants born at extremely low gestational ages JO - JAMA Pediatr VL - 169 UR - https://doi.org/10.1001/jamapediatrics.2014.3362 DO - 10.1001/jamapediatrics.2014.3362 ID - Marlow2015 ER - TY - JOUR AU - Fanaroff, J. M. AU - Hascoet, J. M. AU - Hansen, T. W. R. AU - Levene, M. AU - Norman, M. AU - Papageorgiou, A. AU - Shinwell, E. AU - van de Bor, M. AU - Stevenson, D. K. PY - 2014 DA - 2014// TI - Ipc: the ethics and practice of neonatal resuscitation at the limits of viability: an international perspective JO - Acta Paediatr VL - 103 ID - Fanaroff2014 ER - TY - JOUR AU - Berger, T. M. AU - Steurer, M. A. AU - Bucher, H. U. AU - Fauchere, J. C. AU - Adams, M. AU - Pfister, R. E. AU - Baumann-Hoelzle, R. PY - 2017 DA - 2017// TI - Bassler D, on behalf of the Swiss neonatal end-of-life study group, Euronic study group: retrospective cohort study of all deaths among infants born between 22-27 completed weeks of gestation in Switzerland over a three-year period JO - BMJ Open VL - 7 UR - https://doi.org/10.1136/bmjopen-2016-015179 DO - 10.1136/bmjopen-2016-015179 ID - Berger2017 ER - TY - JOUR AU - Hellmann, J. AU - Knighton, R. AU - Lee, S. K. AU - Shah, P. S. PY - 2016 DA - 2016// TI - Neonatal deaths: prospective exploration of the causes and process of end-of-life decisions JO - Arch Dis Child Fetal Neonatal Ed VL - 101 UR - https://doi.org/10.1136/archdischild-2015-308425 DO - 10.1136/archdischild-2015-308425 ID - Hellmann2016 ER - TY - JOUR AU - Verhagen, A. A. AU - Dorscheidt, J. H. AU - Engels, B. AU - Hubben, J. H. AU - Sauer, P. J. PY - 2009 DA - 2009// TI - End-of-life decisions in Dutch neonatal intensive care units JO - Archives of pediatrics & adolescent medicine VL - 163 UR - https://doi.org/10.1001/archpediatrics.2009.166 DO - 10.1001/archpediatrics.2009.166 ID - Verhagen2009 ER - TY - JOUR AU - Lemyre, B. AU - Daboval, T. AU - Dunn, S. AU - Kekewich, M. AU - Jones, G. AU - Wang, D. AU - Mason-Ward, M. AU - Moore, G. P. PY - 2016 DA - 2016// TI - Shared decision making for infants born at the threshold of viability: a prognosis-based guideline JO - Journal of Perinatology VL - 36 UR - https://doi.org/10.1038/jp.2016.81 DO - 10.1038/jp.2016.81 ID - Lemyre2016 ER - TY - JOUR AU - Pham-Nguyen, A. T. AU - Ho, L. Y. PY - 2013 DA - 2013// TI - Review on neonatal end-of-life decision-making : medical authority or parental autonomy? JO - Proceedings of Singapore Healthcare VL - 22 UR - https://doi.org/10.1177/201010581302200210 DO - 10.1177/201010581302200210 ID - Pham-Nguyen2013 ER - TY - JOUR AU - De Leeuw, R. AU - Cuttini, M. AU - Nadai, M. AU - Berbik, I. AU - Hansen, G. AU - Kucinskas, A. AU - Lenoir, S. AU - Levin, A. AU - Persson, J. AU - Rebagliato, M. PY - 2000 DA - 2000// TI - Treatment choices for extremely preterm infants: an international perspective JO - J Pediatr VL - 137 UR - https://doi.org/10.1067/mpd.2000.109144 DO - 10.1067/mpd.2000.109144 ID - De Leeuw2000 ER - TY - JOUR AU - Geurtzen, R. AU - Draaisma, J. AU - Hermens, R. AU - Scheepers, H. AU - Woiski, M. AU - van Heijst, A. AU - Hogeveen, M. PY - 2016 DA - 2016// TI - Perinatal practice in extreme premature delivery: variation in Dutch physicians’ preferences despite guideline JO - Eur J Pediatr VL - 175 UR - https://doi.org/10.1007/s00431-016-2741-7 DO - 10.1007/s00431-016-2741-7 ID - Geurtzen2016 ER - TY - CHAP AU - Verhagen, E. AU - Janvier, A. ED - Verhagen, E. ED - Janvier, A. PY - 2016 DA - 2016// TI - How babies die and why this is important to clinicians, researchers and parents BT - Ethical Dilemma’s for Critically Ill Babies. Volume 65 PB - Springer CY - Dordrecht ID - Verhagen2016 ER - TY - JOUR AU - Cuttini, M. AU - Nadai, M. AU - Kaminski, M. AU - Hansen, G. AU - de Leeuw, R. AU - Lenoir, S. AU - Persson, J. AU - Rebagliato, M. AU - Reid, M. AU - de Vonderweid, U. PY - 2000 DA - 2000// TI - End-of-life decisions in neonatal intensive care: physicians’ self-reported practices in seven European countries JO - Lancet VL - 355 UR - https://doi.org/10.1016/S0140-6736(00)02378-3 DO - 10.1016/S0140-6736(00)02378-3 ID - Cuttini2000 ER - TY - JOUR AU - Hendriks, M. J. AU - Klein, S. D. AU - Bucher, H. U. AU - Baumann-Holzle, R. AU - Streuli, J. C. AU - Fauchere, J. C. PY - 2017 DA - 2017// TI - Attitudes towards decisions about extremely premature infants differed between Swiss linguistic regions in population-based study JO - Acta Paediatr VL - 106 UR - https://doi.org/10.1111/apa.13680 DO - 10.1111/apa.13680 ID - Hendriks2017 ER - TY - JOUR AU - Kopetsch, T. PY - 2009 DA - 2009// TI - The migration of doctors to and from Germany JO - Journal of Public Health VL - 17 UR - https://doi.org/10.1007/s10389-008-0208-7 DO - 10.1007/s10389-008-0208-7 ID - Kopetsch2009 ER - TY - JOUR AU - Biller-Andorno, N. AU - Zeltner, T. PY - 2015 DA - 2015// TI - Individual responsibility and community solidarity: the Swiss health care system JO - N Engl J Med VL - 373 UR - https://doi.org/10.1056/NEJMp1508256 DO - 10.1056/NEJMp1508256 ID - Biller-Andorno2015 ER - TY - JOUR AU - Hendriks, M. J. AU - Bucher, H. U. AU - Klein, S. D. AU - Streuli, J. C. AU - Baumann-Holzle, R. AU - Fauchere, J. C. PY - 2017 DA - 2017// TI - Exploring societal solidarity in the context of extreme prematurity JO - Swiss Med Wkly VL - 147 ID - Hendriks2017 ER - TY - JOUR AU - Berger, T. M. AU - Bernet, V. AU - El Alama, S. AU - Fauchere, J. C. AU - Hosli, I. AU - Irion, O. AU - Kind, C. AU - Latal, B. AU - Nelle, M. AU - Pfister, R. E. PY - 2011 DA - 2011// TI - Perinatal care at the limit of viability between 22 and 26 completed weeks of gestation in Switzerland. 2011 revision of the Swiss recommendations JO - Swiss Med Wkly VL - 141 ID - Berger2011 ER - TY - JOUR AU - Légaré, F. AU - Witteman, H. O. PY - 2013 DA - 2013// TI - Shared decision making: examining key elements and barriers to adoption into routine clinical practice JO - Health affairs (Project Hope) VL - 32 UR - https://doi.org/10.1377/hlthaff.2012.1078 DO - 10.1377/hlthaff.2012.1078 ID - Légaré2013 ER - TY - JOUR AU - Zimmermann, K. AU - Bergstraesser, E. AU - Engberg, S. AU - Ramelet, A. -. S. AU - Marfurt-Russenberger, K. AU - Von der Weid, N. AU - Grandjean, C. AU - Fahrni-Nater, P. AU - Cignacco, E. PY - 2016 DA - 2016// TI - When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child’s end-of life care JO - BMC Palliative Care VL - 15 UR - https://doi.org/10.1186/s12904-016-0098-3 DO - 10.1186/s12904-016-0098-3 ID - Zimmermann2016 ER - TY - JOUR AU - Hendriks, M. a. n. y. a. J. AU - Abraham, A. n. d. r. e. a. PY - 2017 DA - 2017// TI - End-of-Life Decision Making for Parents of Extremely Preterm Infants JO - Journal of Obstetric, Gynecologic & Neonatal Nursing VL - 46 UR - https://doi.org/10.1016/j.jogn.2017.06.006 DO - 10.1016/j.jogn.2017.06.006 ID - Hendriks2017 ER - TY - JOUR AU - Cornuz, J. AU - Kuenzi, B. AU - Krones, T. PY - 2011 DA - 2011// TI - Shared decision making development in Switzerland: room for improvement! Zeitschrift für Evidenz JO - Fortbildung und Qualität im Gesundheitswesen VL - 105 UR - https://doi.org/10.1016/j.zefq.2011.04.008 DO - 10.1016/j.zefq.2011.04.008 ID - Cornuz2011 ER - TY - JOUR AU - Ferrand, E. AU - Lemaire, F. AU - Regnier, B. AU - Kuteifan, K. AU - Badet, M. AU - Asfar, P. AU - Jaber, S. AU - Chagnon, J. L. AU - Renault, A. AU - Robert, R. PY - 2003 DA - 2003// TI - Discrepancies between perceptions by physicians and nursing staff of intensive care unit end-of-life decisions JO - Am J Respir Crit Care Med VL - 167 UR - https://doi.org/10.1164/rccm.200207-752OC DO - 10.1164/rccm.200207-752OC ID - Ferrand2003 ER - TY - JOUR AU - Gallagher, K. AU - Marlow, N. AU - Edgley, A. AU - Porock, D. PY - 2012 DA - 2012// TI - The attitudes of neonatal nurses towards extremely preterm infants JO - J Adv Nurs VL - 68 UR - https://doi.org/10.1111/j.1365-2648.2011.05865.x DO - 10.1111/j.1365-2648.2011.05865.x ID - Gallagher2012 ER - TY - JOUR AU - Inghelbrecht, E. AU - Bilsen, J. AU - Mortier, F. AU - Deliens, L. PY - 2009 DA - 2009// TI - Nurses’ attitudes towards end-of-life decisions in medical practice: a nationwide study in Flanders, Belgium JO - Palliat Med VL - 23 UR - https://doi.org/10.1177/0269216309106810 DO - 10.1177/0269216309106810 ID - Inghelbrecht2009 ER - TY - JOUR AU - Malloy, D. C. AU - Hadjistavropoulos, T. AU - McCarthy, E. F. AU - Evans, R. J. AU - Zakus, D. H. AU - Park, I. AU - Lee, Y. AU - Williams, J. PY - 2009 DA - 2009// TI - Culture and organizational climate: nurses’ insights into their relationship with physicians JO - Nurs Ethics VL - 16 UR - https://doi.org/10.1177/0969733009342636 DO - 10.1177/0969733009342636 ID - Malloy2009 ER - TY - JOUR AU - Baumann-Holzle, R. AU - Maffezzoni, M. AU - Bucher, H. U. PY - 2005 DA - 2005// TI - A framework for ethical decision making in neonatal intensive care JO - Acta Paediatr VL - 94 UR - https://doi.org/10.1111/j.1651-2227.2005.tb01853.x DO - 10.1111/j.1651-2227.2005.tb01853.x ID - Baumann-Holzle2005 ER - TY - JOUR AU - Arlettaz, R. AU - Mieth, D. AU - Bucher, H. -. U. AU - Duc, G. AU - Fauchère, J. -. C. PY - 2005 DA - 2005// TI - End-of-life decisions in delivery room and neonatal intensive care unit JO - Acta Paediatr VL - 94 UR - https://doi.org/10.1080/08035250510036543 DO - 10.1080/08035250510036543 ID - Arlettaz2005 ER - TY - JOUR AU - Boland, R. A. AU - Davis, P. G. AU - Dawson, J. A. AU - Doyle, L. W. PY - 2016 DA - 2016// TI - What are we telling the parents of extremely preterm babies? JO - Aust N Z J Obstet Gynaecol VL - 56 UR - https://doi.org/10.1111/ajo.12448 DO - 10.1111/ajo.12448 ID - Boland2016 ER - TY - JOUR AU - Bry, K. r. i. s. t. i. n. a. AU - Bry, M. a. i. j. a. AU - Hentz, E. l. i. s. a. b. e. t. AU - Karlsson, H. å. k. a. n. L. AU - Kyllönen, H. a. n. n. a. AU - Lundkvist, M. a. l. i. n. AU - Wigert, H. e. l. e. n. a. PY - 2016 DA - 2016// TI - Communication skills training enhances nurses' ability to respond with empathy to parents' emotions in a neonatal intensive care unit JO - Acta Paediatrica VL - 105 UR - https://doi.org/10.1111/apa.13295 DO - 10.1111/apa.13295 ID - Bry2016 ER - TY - BOOK AU - Haapa Hybinette, H. PY - 2015 DA - 2015// TI - Comparing experiences of neonatal information provision between parents of extremeley premature babies and neonatal nurses PB - Stockholm University CY - Stockholm ID - Haapa Hybinette2015 ER - TY - JOUR AU - de Vos, M. A. AU - van der Heide, A. AU - Maurice-Stam, H. AU - Plötz, F. B. AU - AYN, S. -. v. M. AU - Willems, D. L. AU - HSA, H. AU - Bos, A. P. PY - 2011 DA - 2011// TI - The process of end-of-life decision-making in pediatrics: a national survey in the Netherlands JO - Pediatrics VL - 127 UR - https://doi.org/10.1542/peds.2010-2591 DO - 10.1542/peds.2010-2591 ID - de Vos2011 ER - TY - JOUR AU - Aladangady, N. AU - Shaw, C. AU - Gallagher, K. AU - Stokoe, E. AU - Marlow, N. PY - 2017 DA - 2017// TI - Short-term outcome of treatment limitation discussions for newborn infants, a multicentre prospective observational cohort study JO - Arch Dis Child Fetal Neonatal Ed VL - 102 UR - https://doi.org/10.1136/archdischild-2016-310723 DO - 10.1136/archdischild-2016-310723 ID - Aladangady2017 ER - TY - JOUR AU - Leuthner, S. R. PY - 2014 DA - 2014// TI - Borderline viability: controversies in caring for the extremely premature infant JO - Clin Perinatol VL - 41 UR - https://doi.org/10.1016/j.clp.2014.08.005 DO - 10.1016/j.clp.2014.08.005 ID - Leuthner2014 ER - TY - JOUR AU - Caeymaex, L. AU - Jousselme, C. AU - Vasilescu, C. AU - Danan, C. AU - Falissard, B. AU - Bourrat, M. M. AU - Garel, M. AU - Speranza, M. PY - 2013 DA - 2013// TI - Perceived role in end-of-life decision making in the NICU affects long-term parental grief response JO - Arch Dis Child Fetal Neonatal Ed VL - 98 UR - https://doi.org/10.1136/archdischild-2011-301548 DO - 10.1136/archdischild-2011-301548 ID - Caeymaex2013 ER - TY - JOUR AU - Pinter, A. B. PY - 2008 DA - 2008// TI - End-of-life decision before and after birth: changing ethical considerations JO - J Pediatr Surg VL - 43 UR - https://doi.org/10.1016/j.jpedsurg.2007.09.054 DO - 10.1016/j.jpedsurg.2007.09.054 ID - Pinter2008 ER - TY - JOUR AU - Laventhal, N. AU - Spelke, M. B. AU - Andrews, B. AU - Larkin, L. K. AU - Meadow, W. AU - Janvier, A. PY - 2011 DA - 2011// TI - Ethics of resuscitation at different stages of life: a survey of perinatal physicians JO - Pediatrics VL - 127 UR - https://doi.org/10.1542/peds.2010-1031 DO - 10.1542/peds.2010-1031 ID - Laventhal2011 ER - TY - JOUR AU - Wilkinson, D. PY - 2010 DA - 2010// TI - How much weight should we give to parental interests in decisions about life support for newborn infants? JO - Monash bioethics review VL - 29 UR - https://doi.org/10.1007/BF03351523 DO - 10.1007/BF03351523 ID - Wilkinson2010 ER -