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Table 1 Demographic and diagnostic patient characteristics

From: Patterns of paediatric end-of-life care: a chart review across different care settings in Switzerland

Characteristics Total
N = 149
(100%)
Cardiology
n = 19
(13%)
Neonatology
n = 57
(38%)
Neurology
n = 36
(24%)
Oncology
n = 37
(25%)
Age at death, Mdn (range)
 in months 6 (0 – 209) 6 (1 – 109) Na 19 (1 – 207) 101 (20 – 209)
 in years 0.5 (0.0 – 17.4) 0.5 (0.1 – 9.1) Na 1.6 (0.1 – 17.2) 8.4 (1.7 – 17.4)
Gender, n (%)
 Female 72 (48) 10 (53) 32 (56) 15 (42) 15 (40)
 Male 77 (52) 9 (47) 25 (44) 21 (58) 22 (60)
ICD-10 chapter, description, n (%)
 II Neoplasms 36 (24) 0 (0) 0 (0) 0 (0) 36 (97)
 III Blood/immune system 1 (1) 0 (0) 0 (0) 0 (0) 1 (3)a
 IV Endocrine, nutritional, metabolic 6 (4) 0 (0) 0 (0) 6 (16) 0 (0)
 VI Nervous system 21 (14) 0 (0) 2 (4) 19 (53) 0 (0)
 IX Circulatory systemb 5 (3) 4 (21) 0 (0) 1 (3) 0 (0)
 XVI Conditions originating in perinatal period 45 (30) 0 (0) 44 (77) 1 (3) 0 (0)
 XVII Congenital, chromosomal 35 (24) 15 (79) 11 (19) 9 (25) 0 (0)
Gestational age (for the neonatology group only)    n = 52c   
 24 0/7 – 27 6/7 Na Na 17 (33) Na Na
 28 0/7 – 31 6/7 Na Na 8 (15) Na Na
 32 0/7 – 36 6/7 Na Na 9 (17) Na Na
 37 0/7 - > 42 0/7 Na Na 18 (35) Na Na
Time since diagnosisd
 in days, Mdn (range) Na Na 4 (1 – 26) Na Na
 in months, Mdn (range) 1 (0 – 205) 7 (0 - 66) Na 9 (0 - 205) 4 (0 - 139)
 in years, Mdn (range) 0 (0 – 17) 0.5 (0.5 – 5.5) Na 0.5 (0.0 – 17.0) 0.5 (0.0 – 12.0)
Diagnosis made prenatally n = 147c    n = 34c  
 Yes, n (%) 31 (21) 11 (58) 13 (23) 7 (21) 0 (0)
  1. Na Not applicable, ICD-10 International Classification of Diseases, 10th Revision
  2. aAplastic anaemia
  3. bStroke included
  4. cInformation was missing for some cases
  5. dCalculated from date of birth, even if diagnosis was suspected prenatally