Table 1 Paediatric deaths from complex chronic conditions in Portugal (1987–2011) – demographics, cause and place of death
Variable | Category | All CCCs | CCC categories | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
Cancer | Neuromuscular | Cardiovascular | Respiratory | Renal | Gastrointestinal | Haem. & Immun. | Metabolic | Other | |||
N(%) | 10,571(100) | 2811(26.6) | 2128(20.1) | 2600(24.6) | 419(4.0) | 195(1.8) | 242(2.3) | 181(1.7) | 284(2.7) | 1711(16.2) | |
Gender | Male | 5814(55.0) | 1558(55.4) | 1153(54.2) | 1433(55.1) | 249(59.4) | 128(65.6) | 137(56.6) | 111(61.3) | 147(51.8) | 898(52.5) |
Female | 4756(45.0) | 1253(44.6) | 975(45.8) | 1167(44.9) | 170(40.6) | 67(34.4) | 105(43.4) | 70(38.7) | 137(48.2) | 812(47.5) | |
Nationality | Portuguese | 7078(67.0) | 2111(75.1) | 1475(69.3) | 1761(67.7) | 286(68.3) | 97(49.7) | 178(73.6) | 139(76.8) | 199(70.1) | 832(48.6) |
Other | 2102(19.9) | 697(24.8) | 414(19.5) | 492(18.9) | 94(22.4) | 15(7.7) | 26(10.7) | 42(23.2) | 85(29.9) | 237(13.9) | |
Missing | 1391(13.2) | 3(0.1) | 239(11.2) | 347(13.3) | 39(9.3) | 83(42.6) | 38(15.7) | 0(0.0) | 0(0.0) | 642(37.5) | |
Age of death | Median, years (IQR) | 0.94 (0.04–8.94) | 9.86 (5.16–14.73) | 2.00 (0.14–10.89) | 0.18 (0.02–0.96) | 0.12 (0.00–0.64) | 0.00 (0.00–0.21) | 0.22 (0.03–1.20) | 2.17 (0.65–10.77) | 1.78 (0.25–7.94) | 0.01 (0.00–0.25) |
0–27 days | 3055(28.9) | 20(0.7) | 449(21.1) | 1005(38.7) | 193(46.1) | 135(69.2) | 88(36.4) | 0(0.0) | 38(13.4) | 1127(65.9) | |
28–364 days | 2289(21.7) | 111(3.9) | 457(21.5) | 961(37.0) | 138(32.9) | 22(11.3) | 87(36.0) | 67(37.0) | 91(32.0) | 355(20.7) | |
1–5 years | 1855(17.5) | 708(25.2) | 405(19.0) | 413(15.9) | 30(7.2) | 17(8.7) | 38(15.7) | 49(27.1) | 71(25.0) | 124(7.2) | |
6–10 years | 1259(11.9) | 733(26.1) | 290(13.6) | 102(3.9) | 18(4.3) | 3(1.5) | 13(5.4) | 21(11.6) | 34(12.0) | 45(2.6) | |
11–14 years | 1046(9.9) | 586(20.8) | 280(13.2) | 64(2.5) | 21(5.0) | 11(5.6) | 9(3.7) | 13(7.2) | 30(10.6) | 32(1.9) | |
15–17 years | 1067(10.1) | 653(23.2) | 247(11.6) | 55(2.1) | 19(4.5) | 7(3.6) | 7(2.9) | 31(17.1) | 20(7.0) | 28(1.6) | |
<1 year | 5344(50.6) | 131(4.7) | 906(42.6) | 1966(75.6) | 331(79.0) | 157(80.5) | 175(72.3) | 67(37.0) | 129(45.4) | 1482(86.6) | |
≥1 year | 5227(49.4) | 2680(95.3) | 1222(57.4) | 634(24.4) | 88(21.0) | 38(19.5) | 67(27.7) | 114(63.0) | 155(54.6) | 229(13.4) | |
Place of death | Home | 2052(19.4) | 794(28.2) | 623(29.3) | 333(12.8) | 21(5.0) | 24(12.3) | 23(9.5) | 21(11.6) | 55(19.4) | 158(9.2) |
Hospital | 8383(79.3) | 1997(71.0) | 1452(68.2) | 2230(85.8) | 397(94.7) | 171(87.7) | 218(90.1) | 159(87.8) | 226(79.6) | 1533(89.6) | |
Other | 136(1.3) | 20(0.7) | 53(2.5) | 37(1.4) | 1(0.2) | 0(0.0) | 1(0.4) | 1(0.6) | 3(1.1) | 20(1.2) | |