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Table 2 eTIPS: Summary of the intervention, structured according to TIDIER checklist

From: Participatory design in the development of an early therapy intervention for perinatal stroke

BRIEF NAME

eTIPS – Early Therapy in Perinatal Stroke

Why

Early intervention to promote activity of the potentially affected side of the body in the first 6 months of life after perinatal stroke could improve motor outcome through activity-dependent plasticity.

What

Main ingredient: parental support with delivery of a pervasive, lateralized therapy approach in the first 6 months of life. The aim is to promote active movement, sensory input and visual stimulation to the potentially affected side of the body, but incorporate the approach into activities of daily life (feeding, playtime, changing, bath time, when out and about etc.)

Who provides

Currently the eTIPS team provide training and support to parents/carers, who deliver the eTIPS approach to infants. The training and support could be delegated (with development of a training resource) to a community physiotherapist or health visitor.

Modes of delivery of training to parents

Materials for participants – manual, website, DVDs, ribbon, stickers, diary, mini-guides, mind maps, checklists

Materials for fidelity of training/education of parents – checklist and Perinatal Stroke information

Materials for checking components delivered – checklist

Materials for training intervention providers – to be developed in next phase

Procedures: Initial visit with education and training. Principles reinforced through monthly follow-up visits and fortnightly phone calls until 6 months corrected age. Weekly texts provide prompts and an opportunity for troubleshooting.

Where

In the child’s environment – at home or out and about

When and how much?

1st 6 months of life (or for preterm infants, from term-equivalent age to 6 months age corrected); pervasive

Tailoring

Side of intervention is side of the body at increased risk of developing motor difficulties (hence 2 different manuals – Right from the Start, and Best from the Left)

Modifications

Modifications made following focus groups are summarized in Table 1

How well (Fidelity)

Planned: Interviews, Telephone calls; Home visits; Texts; Diaries

Checklists to use when training parents