Table 2 Topic guide questions on parents’ experiences of clinic consultations

• How often do you and your child attend clinic? Who attends the clinic with you? Can you talk me through what usually happens when you attend at clinic?

• How do you feel about the way the clinic is run?

• How do you feel about the information/advice received at clinic?

• How is your child involved in the consultation?

• What other forms of advice/support provided at the clinic would help you?

• Do you have any contact (e.g. phone/email) with any of the clinical care team in between scheduled appointments? When and why would you get in touch?

• For parents who have missed appointments: What are the reasons for this? What might make it easier for them to attend in the future