Table 1 Collected data items
Birth/Postnatal period | |
Birth status | Stillborn, Liveborn, Liveborn later died |
Gestational age | Rounded to the nearest week |
Delivery method | Vaginal, Assisted Vaginal, Elective C-S, Emergency C-S |
Apgar @ 5 mins | |
Acidosis in postnatal period | pH < 7.35 on any Arterial Blood Gas within postnatal period |
Intubation | Needed mechanical ventilation prior to surgery |
Surgical period | |
Listed | Yes or No. If no, reason: i.e. Parental or MDT choice |
Weight at time of surgery | Grammes |
Age at time of surgery | Days |
Cardiopulmonary bypass time | Minutes |
Cross-clamp time | Minutes |
Length of post-op ICU stay | Hours if <4 days; days if >4 days |
Surgical mortality | Mortality between induction and post-op ICU discharge. |
Post-surgical period | |
Ongoing cardiac symptoms | Adjudged at max follow-up. E.g. SOB, decreased exercise tolerance |
Ongoing cardiac medications | Adjudged at max follow-up. E.g. β-blockers, Diuretics |
Need for re-intervention | |
Neurodevelopmental impairment | Referral to specialist service (e.g. SALT) or specific diagnosis (e.g. Cerebral Palsy of Developmental delay) |
Mortality | |