Table 2 Report characteristics
From: Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease
Disease category | # reports | Median # eligible children studied (range)* | Primary unit of analysis (#) (% reports) by disease(s) |
|---|---|---|---|
Cerebral palsy | 51 | 82.5 (6 - 813) | Child/adolescent (26) (50%) |
Caregiver/parent (9) (18%) | |||
Dyad - child/caregiver (12) (24%) | |||
Family (4) (8%) | |||
Cystic fibrosis | 11 | 42 (23 - 136) | Child/adolescent (4) (36%) |
Caregiver/parent (4) (36%) | |||
Dyad - child/caregiver (3) (27%) | |||
Diabetes | 100 | 84 (10 - 2,101) | Child/adolescent (44) (44%) |
Caregiver/parent (18) (18%) | |||
Dyad - child/caregiver (35) (35%) | |||
Sibling (1) (1%) | |||
Family (2) (2%) | |||
Down syndrome | 9 | 42.5 (25 - 440) | Child/adolescent (1) (11%) |
Caregiver/parent (4) (44%) | |||
Dyad - child/caregiver (2) (22%) | |||
Family (2) (22%) | |||
Epilepsy | 47 | 79.5 (9 - 474) | Child/adolescent (26) (55%) |
Caregiver/parent (7) (15%) | |||
Dyad - child/caregiver (11) (23%) | |||
Sibling (1) (2%) | |||
Family (2) (4%) | |||
Hemoglobinopathies | 25 | 59 (7 - 320) | Child/adolescent (8) (32%) |
Caregiver/parent (5) (20%) | |||
Dyad - child/caregiver (11) (44%) | |||
Sibling (1) (4%) | |||
Other diseases | 29 | 41 (12 - 272) | Child/adolescent (15) (52%) |
Caregiver/parent (7) (24%) | |||
Dyad - child/caregiver (6) (21%) | |||
Family (1) (3%) | |||
Reports of multiple, eligible diseases | 32 | 66.5 (9 - 327) | Child/adolescent (8) (25%) |
Caregiver/parent (16) (50%) | |||
Dyad - child/caregiver (6) (19%) | |||
Sibling (1) (3%) | |||
Family (1) (3%) | |||
All diseases | 304 | 76 (6 - 2,101) | Child/adolescent (132) (43%) |
Caregiver/parent (70) (23%) | |||
Dyad - child/caregiver (86) (28%) | |||
Sibling (4) (1%) | |||
Family (12) (4%) |