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Table 1 Clinic Characteristics

From: International survey of diagnostic services for children with Fetal Alcohol Spectrum Disorders

Clinic Site

Funding Source

Services Offered

Training for Professionals

Training for Parents

Referral Criteria

Ages Seen

New referrals seen per year

% of Children seen with FAS/FASD

Canada

Province A13

State, fee for service

Diagnosis, short term management

Yes

NR

None

All ages

60

NR

Province B14

State, research, community

Diagnosis, short term management

No

No

Children with verified prenatal exposure to alcohol selected from the waiting list for the Psychology Clinic

6 to 16 yrs

15 in pilot period

NR

Province C

Federal, charitable

Screening, diagnosis, management

NR

Yes

Children of drug treatment programme only

0 to 6 yrs

50 to 75

NR

Province C16

Federal funding now ceased; clinic not operational

Diagnosis, short term management

Yes

NR

None

0 to 12 yrs

49

3/77

Province C

State

Screening, diagnosis, management

Yes

Yes

Prenatal alcohol exposure & evidence of CNS (behaviour)

<18 yrs

40- to 50

Unknown, most would have ARND

USA

State Aa

Federal

Diagnosis, short term management

Yes

No

Pre-natal alcohol exposure

Usually <18 years

150 across network

2.6/70

State B

Self-pay, insurance

Diagnosis

Yes

Yes

None

0 to 12 yrs

35

10/90

State Bb

Insurance, research grants

Screening, diagnosis, management

Yes

No

None

All ages

100

10/10

State B

Fee for service

Diagnosis

Yes

No

None

0 to 21 yrs

50

25/25

State B

State

Screening, diagnosis

Yes

No

Prenatal alcohol exposure and contacted telephone information service

All ages

NR

1/5

State C

State & federal funding, fee for service, insurance

Screening, diagnosis, management

Yes

Yes

Prenatal exposure to alcohol or other drugs

0 to 21 yrs

200 to 250

45/30

State Db

Research grants

Screening, diagnosis

No

No

Children of heavy drinkers

NR

NR

NR

State E

Fee for service, charitable foundation

Diagnosis

Yes

No

FASD highly suspected, but may not be confirmed.

0 to 21 yrs

80

5/87

State F

State & federal

Screening, diagnosis

Yes

Yes

None

0 to 20 yrs

100

20/30

State Gc

Federal

Screening, diagnosis

Yes

NR

Developmental delay, growth parameters < 25th centile, known prenatal alcohol exposure, or previous diagnosis of FAS/FASD

0 to 18 yrs

300

0.7/3.7

State H

State & federal funding, fee for service

Screening, diagnosis, management

Yes

Yes

None

All ages

300 to 400

10/15

State I

Sliding fee scale, adoption subsidy, children services, contributions

Screening, diagnosis, management

Yes

Yes

Prenatal Alcohol exposure suspected then referrals screened for suitability

3 to 18 yrs

20

20/80

State J

State

Screening, diagnosis

Yes

Yes

Any prenatal alcohol exposure

All ages

60 families

9/vast majority

State K

Contract, federal, state, fee for service

Screening, diagnosis, short term management

Yes

Yes

Prenatal alcohol exposure, developmental &/or behavioural concerns

3 to 16 yrs

24

5/95

Chile

Clinic A

Research grants (US NIH)

Screening, diagnosis, management

Yes

Yes

Protocol (unspecified)

0 to 5 yrs

20

8/25

South Africa

Clinic A

Research grants (US and local)

Screening, diagnosis, management

Yes

Yes

Birth records from local hospitals

9 to 24 months & 7 to 12 yrs

Recruited, not referred

Multiple sites, range: 1.9 to 10.3/2.5 to 12.2

Clinic Bc

Federal (US Research)

Screening, diagnosis, management

Yes

NR

Developmental delay, growth parameters < 25th centile, known prenatal alcohol exposure, or previous diagnosis of FAS/FASD

0 to 18 yrs

1600

7.4/NR

Italy

Clinic Ac

Federal (US Research)

Screening, diagnosis

Yes

NR

Developmental delay, growth parameters <25th centile, known prenatal alcohol exposure, or previous diagnosis of FAS/FASD

0 to 18 yrs

543

4/NR

United Kingdom

Clinic A

National Health Service

Diagnosis

Yes

No

None

14 to 18 yrs

12 (6 months only)

0/100

  1. NR, no response to the question.
  2. a Aggregate data for network of 11 clinics.
  3. b These clinics also have research focussed satellite clinics, however insufficient separate information was given for separate inclusion.
  4. c Clinics are a linked research network.