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Table 1 Clinic Characteristics

From: International survey of diagnostic services for children with Fetal Alcohol Spectrum Disorders

Clinic Site Funding Source Services Offered Training for Professionals Training for Parents Referral Criteria Ages Seen New referrals seen per year % of Children seen with FAS/FASD
Canada
Province A13 State, fee for service Diagnosis, short term management Yes NR None All ages 60 NR
Province B14 State, research, community Diagnosis, short term management No No Children with verified prenatal exposure to alcohol selected from the waiting list for the Psychology Clinic 6 to 16 yrs 15 in pilot period NR
Province C Federal, charitable Screening, diagnosis, management NR Yes Children of drug treatment programme only 0 to 6 yrs 50 to 75 NR
Province C16 Federal funding now ceased; clinic not operational Diagnosis, short term management Yes NR None 0 to 12 yrs 49 3/77
Province C State Screening, diagnosis, management Yes Yes Prenatal alcohol exposure & evidence of CNS (behaviour) <18 yrs 40- to 50 Unknown, most would have ARND
USA
State Aa Federal Diagnosis, short term management Yes No Pre-natal alcohol exposure Usually <18 years 150 across network 2.6/70
State B Self-pay, insurance Diagnosis Yes Yes None 0 to 12 yrs 35 10/90
State Bb Insurance, research grants Screening, diagnosis, management Yes No None All ages 100 10/10
State B Fee for service Diagnosis Yes No None 0 to 21 yrs 50 25/25
State B State Screening, diagnosis Yes No Prenatal alcohol exposure and contacted telephone information service All ages NR 1/5
State C State & federal funding, fee for service, insurance Screening, diagnosis, management Yes Yes Prenatal exposure to alcohol or other drugs 0 to 21 yrs 200 to 250 45/30
State Db Research grants Screening, diagnosis No No Children of heavy drinkers NR NR NR
State E Fee for service, charitable foundation Diagnosis Yes No FASD highly suspected, but may not be confirmed. 0 to 21 yrs 80 5/87
State F State & federal Screening, diagnosis Yes Yes None 0 to 20 yrs 100 20/30
State Gc Federal Screening, diagnosis Yes NR Developmental delay, growth parameters < 25th centile, known prenatal alcohol exposure, or previous diagnosis of FAS/FASD 0 to 18 yrs 300 0.7/3.7
State H State & federal funding, fee for service Screening, diagnosis, management Yes Yes None All ages 300 to 400 10/15
State I Sliding fee scale, adoption subsidy, children services, contributions Screening, diagnosis, management Yes Yes Prenatal Alcohol exposure suspected then referrals screened for suitability 3 to 18 yrs 20 20/80
State J State Screening, diagnosis Yes Yes Any prenatal alcohol exposure All ages 60 families 9/vast majority
State K Contract, federal, state, fee for service Screening, diagnosis, short term management Yes Yes Prenatal alcohol exposure, developmental &/or behavioural concerns 3 to 16 yrs 24 5/95
Chile
Clinic A Research grants (US NIH) Screening, diagnosis, management Yes Yes Protocol (unspecified) 0 to 5 yrs 20 8/25
South Africa
Clinic A Research grants (US and local) Screening, diagnosis, management Yes Yes Birth records from local hospitals 9 to 24 months & 7 to 12 yrs Recruited, not referred Multiple sites, range: 1.9 to 10.3/2.5 to 12.2
Clinic Bc Federal (US Research) Screening, diagnosis, management Yes NR Developmental delay, growth parameters < 25th centile, known prenatal alcohol exposure, or previous diagnosis of FAS/FASD 0 to 18 yrs 1600 7.4/NR
Italy
Clinic Ac Federal (US Research) Screening, diagnosis Yes NR Developmental delay, growth parameters <25th centile, known prenatal alcohol exposure, or previous diagnosis of FAS/FASD 0 to 18 yrs 543 4/NR
United Kingdom
Clinic A National Health Service Diagnosis Yes No None 14 to 18 yrs 12 (6 months only) 0/100
  1. NR, no response to the question.
  2. a Aggregate data for network of 11 clinics.
  3. b These clinics also have research focussed satellite clinics, however insufficient separate information was given for separate inclusion.
  4. c Clinics are a linked research network.