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Table 1 Study and sample characteristics of reports on parents' psychological adjustment

From: Parents' psychological adjustment in families of children with Spina Bifida: a meta-analysis

Reports included in meta-analysis

N

Design

Comparison Group

Parent Gender

Child Impairment1

Child Age

Child Treatment

Outcome Measure2

Barakat & Linney, 1992 [31]

29      

Prospective

Control

Mothers

SB

(MMC-non retarded)      

6–11

Early

BSI

Barakat & Linney, 1995 [32]

29

Prospective

Control

Mothers

SB

(MMC-non retarded)

6–11

Early

BSI

Evans, Tew, & Laurence, 1986 [48]

124

Longitudinal

Control

Fathers

Combined: NTD

18

Late

General Health Questionnaire

Fagan & Schor, 1993 [61]

50

Prospective

Norm scores

Mothers

SB

M = 8.1

Early

Malaise Inventory

Holmbeck, Gorey-Ferguson, Hudson, Seefeldt, Shapera, Turner, & Uhler, 1997 [43]

55

Prospective

Control

Mothers & fathers

SB

8–9

Early

SCL-90R

Horton & Wallander, 2001 [23]

33

Prospective

Norm scores

Mothers

SB

M = 10.6

Early

BSI

Kazak & Marvin, 1984 [62]

56

Prospective

Control

Mothers & fathers

SB (MMC)

1–16

Early

Langner Symptom Checklist

King, King, Rosenbaum, & Goffin, 1999 [22]

164

Prospective

Norm scores

Mothers & fathers

Combined: CP, SB, NOS

3–6

Early

SCL-90R

Kronenberger & Thompson, 1992 [20]

66

Prospective

Norm scores

Mothers

SB (MMC)

0–18

Early

SCL-90R

Kronenberger & Thompson, 1992 [21]

66

Prospective

Norm scores

Mothers

SB (MMC)

0–18

Early

SCL-90R

Lemanek, Jones, & Lieberman, 2000 [56]

59

Prospective

Norm scores

Mothers

SB-non retarded

3–16

Early

SCL-90R

Tew & Laurence, 1973 [33]

51

Longitudinal

Norm scores

Mothers

SB

M = 11.6

Late

Malaise Inventory

Tew & Laurence, 1975 [34]

51

Longitudinal

None

Mothers

SB

M = 11.6

Late

Malaise Inventory

Wallander, Varni, Babani, DeHaan, Thompson, Wilcox, & Tweddle Banis, 1989 [14]

50

Prospective

Norm scores

Mothers

Combined: SB, CP

6–11

Early

Malaise Inventory

Wiegner & Donders, 2000 [45]

34

Prospective

Norm scores

Mothers

SB

3–12

Early

BSI

Reports excluded from meta-analysis

N

Design

Comparison Group

Parent Gender

Child Impairment 1

Child Age

Child Treatment

Outcome Measure 2

Dorner, 1973 [63]

63

Prospective

None

Mothers

SB

13–19

Late

Malaise Inventory

Dorner, 1974 [44]

63

Prospective

None

Mothers

SB

13–19

Late

Malaise Inventory

Dorner, 1975 [64]

63

Prospective

None

Mothers

SB

13–19

Late

Malaise Inventory

Dorner & Atwell, 1985 [65]

25

Prospective

None

Mothers & fathers

Non-surviving SB

-

-

Malaise Inventory

Downey, 1981 [66]

 

Cohorts

None

-

Combined: SB, Down syndrome

0–2

-

Standardized questionnaire

Eden-Piercy, Blacher, & Eyman, 1986 [67]

77

Prospective

None

Mothers

Combined: SB, autistism, mentally retarded

1–10

Early

Questionnaire on emotions

Hare, Laurence, Payne, & Rawnsley, 1966 [52]

120

Longitudinal

None

Mothers & fathers

Combined: SB, ANC, HYDRO

 

Late

Semi-structured interview

Kazak, 1987 [46]

125

Prospective

Control

Mothers & fathers

Combined: SB, PKU, mentally retarded

1–16

Early

Langner Symptom Checklist

Kolin, Scherzer, New, & Garfield, 1971 [68]

13

Prospective

None

Mothers

SB (MMC)

7–11

Late

Psychiatric observation

Kronenberger, 1991(abstract) [69]

66

Prospective

None

Mothers

SB (MMC)

0–18

Early

SCL-90R

Loebig, 1990 [70]

10

Prospective

None

Mothers

SB (MMC)

5–11

Early

Semi-structured interview

McAndrew, 1976 [47]

116

Retrospective

None

Mothers & fathers

Combined: MMC, CP, limb deficit

5–10

-

Semi-structured interview

Murdoch, 1984 [53]

109

Retrospective

None

Mothers

SB

2–10

Early

Semi-structured interview

Nielsen, 1980 [54]

30

Longitudinal

None

Mothers

SB (MMC)

0–6

Early

Semi-structured interview

Richards & McIntosh, 1973 [71]

86

Prospective

None

Mothers & fathers

SB (SBA)

2–6

Late

Semi-structured interview

Rolle, Niemeyer, & Grafe, 2000 [72]

80

Retrospective

None

Mothers & fathers

Combined: SB, HYDRO

0–18

Early

Coping Skills

Spaulding & Morgan, 1986 [59]

19

Prospective

Control

Mothers & fathers

SB-non retarded

5–15

Early

Social Readjustment Rating Scale

Walker, Thomas, & Russell, 1971 [55]

108

Retrospective

None

Mothers & fathers

SB

0–3

Early

Standardized questionnaire

  1. 1ANC = anencephaly, CP = cerebral palsy, HYDRO = hydrocephalus, MMC = myelomeningocele, NOS = not otherwise specified, NTD = neural tube defect, PKU = phenylketonuria, SB = spina bifida, SBA = spina bifida aperta.
  2. 2BSI = Brief Symptom Inventory, SCL-90R = Symptom CheckList-90 items Revised.