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Table 1 Summary of clinical management and follow up protocols, and response rates for each center

From: Determinants of response to a parent questionnaire about development and behaviour in 3 year olds: European multicentre study of congenital toxoplasmosis

     Organizational attributes
Study Center Total sent questionnaires Prenatal re-testing interval (months)1 Duration post-natal treatment (month) A B1 B2. C Total
FRANCE         
Lyon1 184 1 14 3 0 3 3 9
Paris1 182 1 12 1 1 2 2 6
Grenoble1 34 1 12–24 1 0 1 1 3
Marseille1 91 1 12–24 3 1 3 3 10
Nice1 44 1 24 4 0 3 3 10
Toulouse1 73 1 12 4 0 2 2 8
AUSTRIA         
Vienna1 187 3 12 4 1 3 2 10
ITALY         
Naples1 53 3 12 4 1 3 3 11
SWEDEN         
Stockholm1 16 NS4 12 4 1 2 1 8
POLAND         
Poznan2 180 NS 12 4 1 3 2 10
DENMARK         
Copenhagen3 14 NS 3 1 1 1 2 5
TOTAL         
  1. NS = neonatal screening
  2. Uninfected children: 1 born to infected women; 2 sampled from general population, 3 none 4 Detection of maternal infection based on neonatal testing of neonatal Guthrie card bloodspots and retrospective testing of stored maternal serum
  3. Organizational attributes
  4. A. Degree of local study clinician direct involvement in follow-up (FU) of children and contact with child's local paediatrician
  5. 4 = FU >= 75% children and regular contact
  6. 3 = FU >= 50% children and regular contact
  7. 2 = FU < 50% children and some contact
  8. 1 = FU <25% and no regular contact
  9. B. Access to addresses
  10. B1: 1 = National or local address register
  11. 0 = No use of population address register
  12. B2: 3 = regular contact with parents/paediatricians to update addresses >50%
  13. 2 = initial contact address >50% but additional methods to update addresses
  14. 1 = >75% through initial contact address only
  15. C. Direct contact with parents to encourage return of questionnaire
  16. 3. Telephone contact and special letter
  17. 2. Follow-up letter
  18. 1. No special efforts