| | | | |
Organizational attributes
|
|---|
|
Study Center
|
Total sent questionnaires
|
Prenatal re-testing interval (months)1
|
Duration post-natal treatment (month)
|
A
|
B1
|
B2.
|
C
|
Total
|
|---|
|
FRANCE
| | | | | | | | |
|
Lyon1
|
184
|
1
|
14
|
3
|
0
|
3
|
3
|
9
|
|
Paris1
|
182
|
1
|
12
|
1
|
1
|
2
|
2
|
6
|
|
Grenoble1
|
34
|
1
|
12–24
|
1
|
0
|
1
|
1
|
3
|
|
Marseille1
|
91
|
1
|
12–24
|
3
|
1
|
3
|
3
|
10
|
|
Nice1
|
44
|
1
|
24
|
4
|
0
|
3
|
3
|
10
|
|
Toulouse1
|
73
|
1
|
12
|
4
|
0
|
2
|
2
|
8
|
|
AUSTRIA
| | | | | | | | |
|
Vienna1
|
187
|
3
|
12
|
4
|
1
|
3
|
2
|
10
|
|
ITALY
| | | | | | | | |
|
Naples1
|
53
|
3
|
12
|
4
|
1
|
3
|
3
|
11
|
|
SWEDEN
| | | | | | | | |
|
Stockholm1
|
16
|
NS4
|
12
|
4
|
1
|
2
|
1
|
8
|
|
POLAND
| | | | | | | | |
|
Poznan2
|
180
|
NS
|
12
|
4
|
1
|
3
|
2
|
10
|
|
DENMARK
| | | | | | | | |
|
Copenhagen3
|
14
|
NS
|
3
|
1
|
1
|
1
|
2
|
5
|
|
TOTAL
| | | | | | | | |
- NS = neonatal screening
- Uninfected children: 1 born to infected women; 2 sampled from general population, 3 none 4 Detection of maternal infection based on neonatal testing of neonatal Guthrie card bloodspots and retrospective testing of stored maternal serum
- Organizational attributes
- A. Degree of local study clinician direct involvement in follow-up (FU) of children and contact with child's local paediatrician
- 4 = FU >= 75% children and regular contact
- 3 = FU >= 50% children and regular contact
- 2 = FU < 50% children and some contact
- 1 = FU <25% and no regular contact
- B. Access to addresses
- B1: 1 = National or local address register
- 0 = No use of population address register
- B2: 3 = regular contact with parents/paediatricians to update addresses >50%
- 2 = initial contact address >50% but additional methods to update addresses
- 1 = >75% through initial contact address only
- C. Direct contact with parents to encourage return of questionnaire
- 3. Telephone contact and special letter
- 2. Follow-up letter
- 1. No special efforts
