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Table 1 Summary of clinical management and follow up protocols, and response rates for each center

From: Determinants of response to a parent questionnaire about development and behaviour in 3 year olds: European multicentre study of congenital toxoplasmosis

    

Organizational attributes

Study Center

Total sent questionnaires

Prenatal re-testing interval (months)1

Duration post-natal treatment (month)

A

B1

B2.

C

Total

FRANCE

        

Lyon1

184

1

14

3

0

3

3

9

Paris1

182

1

12

1

1

2

2

6

Grenoble1

34

1

12–24

1

0

1

1

3

Marseille1

91

1

12–24

3

1

3

3

10

Nice1

44

1

24

4

0

3

3

10

Toulouse1

73

1

12

4

0

2

2

8

AUSTRIA

        

Vienna1

187

3

12

4

1

3

2

10

ITALY

        

Naples1

53

3

12

4

1

3

3

11

SWEDEN

        

Stockholm1

16

NS4

12

4

1

2

1

8

POLAND

        

Poznan2

180

NS

12

4

1

3

2

10

DENMARK

        

Copenhagen3

14

NS

3

1

1

1

2

5

TOTAL

        
  1. NS = neonatal screening
  2. Uninfected children: 1 born to infected women; 2 sampled from general population, 3 none 4 Detection of maternal infection based on neonatal testing of neonatal Guthrie card bloodspots and retrospective testing of stored maternal serum
  3. Organizational attributes
  4. A. Degree of local study clinician direct involvement in follow-up (FU) of children and contact with child's local paediatrician
  5. 4 = FU >= 75% children and regular contact
  6. 3 = FU >= 50% children and regular contact
  7. 2 = FU < 50% children and some contact
  8. 1 = FU <25% and no regular contact
  9. B. Access to addresses
  10. B1: 1 = National or local address register
  11. 0 = No use of population address register
  12. B2: 3 = regular contact with parents/paediatricians to update addresses >50%
  13. 2 = initial contact address >50% but additional methods to update addresses
  14. 1 = >75% through initial contact address only
  15. C. Direct contact with parents to encourage return of questionnaire
  16. 3. Telephone contact and special letter
  17. 2. Follow-up letter
  18. 1. No special efforts