Table 3 Summary information on included papers
Ref | Source paper | Condition | Country and setting | Participants | Data collection |
|---|---|---|---|---|---|
[15] | Knafl et al. 1996 | Various long-term conditions | US: Recruited from 3 health centres | 63 families of children age 7–14 yrs (36 diabetes, 7 renal disease, 7 asthma, 6 arthritis, 9 other) | Interviews |
[20] | Bokhour et al. 2008 | Asthma | US: Diverse health care settings | 37 parents of 37 children age 5–12 yrs | Home interviews |
[21] | Peterson-Sweeney et al. 2003 | Asthma | US: Setting unclear | 18 mothers of children age 2–18 yrs | Home interviews |
[22] | Callery et al. 2003 | Asthma | UK: Emergency room & primary care | Main caregivers of 25 young people age 9–16 yrs | Home interviews |
[23] | Foster et al. 2001 | Cystic fibrosis | UK: Single hospital clinic | 8 mothers, 1 father of children age 10–18 yrs (8 households) | Interviews |
[24] | Slatter et al. 2004 | Cystic fibrosis | UK: Database of children with cystic fibrosis | 17 interviews with parents of children age 3–12 years (15 households) | Home interviews |
[25] | Williams et al. 2007a | Cystic fibrosis | UK: 2 hospital clinics | 31 parents of 32 children age 7–17 yrs | Home interviews |
[26] | Williams et al. 2007b | Cystic fibrosis | As above | As above | As above |
[27] | Hammami et al. 2004 | HIV | Belgium: Single hospital clinic | 11 caregivers of children age 0–18 yrs | Interviews |
[28] | Merzel et al. 2008 | HIV | US: Treatment adherence project | 14 caregivers of 15 children age 10–16 yrs | Interviews |
[29] | Wrubel et al. 2005 | HIV | US: Participants from research study | 71 maternal caregivers (biological, foster, adoptive mothers or other female relatives) of children age 1–18 yrs | Hospital or home interview |
[30] | Britton & Moore 2002 | Juvenile arthritis | UK: Single hospital clinic | 9 families of girls age 7–8 or 11–13 yrs | Home interviews |
[31] | Sullivan-Bolyai et al. 2003a | Diabetes | US: 2 hospital clinics | 28 mothers of children aged 0–4 yrs | Home interviews |
[32] | Schilling et al. 2006 | Diabetes | US: Participants from research studies | 17 mothers and 5 fathers of 22 young people age 8–19 yrs | Home interviews |
[33] | Schroder et al. 2002 | Juvenile arthritis | Australia: Single hospital clinic | 5 mothers of children age 3–10 yrs | Interviews |
[34] | Prout et al. 1999 | Asthma | UK: 2 primary care centres | 9 families of children age 7–12 yrs | Varied data collection |
[35] | Klok et al. 2011 | Asthma | Netherlands: single hospital clinic and primary care | 44 parents of children age 2–12 (34 households) | Focus groups |
[36] | van Dellen et al. 2008 | Asthma | Netherlands: Multicentre research | 28 mothers of children age 7–17 yrs | Focus groups |
[37] | Sullivan-Bolyai et al. 2003b | Diabetes | As above | As above | As above |