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Table 2 Cohort characteristics of transition readiness assessment tools

From: A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease

TOOL

COHORT CHARACTERISTICS

 

Disease

Number

Age (years)

Time since diagnosis/transplant

Race & gender

Country of validation

TRAQ [4]

Chronic diseases

192

16-26 (mean: 19.7)

NR

64% white, 56% female

USA

UNC

TRxANSITION [17]

Chronic diseases

NR

12-22

NR

NR

USA

Self-management skills assessment guide [16]

Chronic diseases

49

11-19 (mean: 15.6)

NR

86% Caucasian

Canada

SCIS [8]

CF (with pancreatic insufficiency)

76 patients, 70 parents

4-17 (mean: 11.2)

NR

94% white

USA

Readiness questionnaire [9]

CF

36

NR

NR

NR

Canada

RTQ [10]

Renal transplant

48 patients, 32 parents

15-21 (mean: 18.6)

5.73 y

58% white, 29% black, 10% Hispanic

USA

TRS [2]

Liver transplant

71 patients, 58 parents

11-20 (mean: 15.6)

1-19 y (mean: 9.4 y)

56% female

USA

RCBRS [13]

T1DM

69

12-17 (mean: 14.2)

>6 months (mean: 5.49)

87% Caucasian

USA

McPherson et al. [14]

Sickle cell disease

69

14-21

NR

43% female

USA

TRQ [15]

HIV

65

9-25 (mean: 15.8)

1-17 years (mean: 10.5)

44% female, 45% Caucasian

USA

  1. CF, cystic fibrosis T1DM, type 1 diabetes mellitus; HIV, human immunodeficiency virus; NR, not reported.