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Table 1 Design of transition readiness assessment tools

From: A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease

TOOL TOOL
  Disease-specificity Number of domains Number of questions What questions are asking? Nature of responses Reporters Calculation of scores
TRAQ [4] Chronic diseases 2 33 Skills 5-point Likert scale (Stages of change model) Patient 1 point each
UNC TRxANSITION [17] Chronic diseases 10 33 Knowledge & self-management Interview style (cross-referenced with medical records) Patient Each domain=1 Maximum 10
Self-Management Skills Assessment Guide [16] Chronic diseases 1 21 Health-care awareness & decision-making 5-point Likert scale Patient & parent 1-5 for each item, total score: 105
SCIS [8] CF Multiple 44 Independent knowledge/behaviour Yes/no Parent 1point for Yes, 0 for No. Maximum 44
Readiness Questionnaire [9] CF 2 24 Knowledge & behaviour Multiple choice or short answer Patient 1point each, Maximum 24
RTQ [10] Renal transplant 3 22 Involvement in behaviours & overall transition readiness 4-point Likert scale (not/sometimes/often/always) Patient & parent 1-4 each question Maximum 48
TRS [2] Liver transplant 4 Patient: 42. Parent: 36 Skills, knowledge, behaviour Likert scale & skill demonstration Patient & parent Items vary, Maximum 126 (parent: 108)
RCBRS [13] T1DM 1 7 Readiness to change responsibility 5-point scale (Stages of change model) Patient & parent 1-5 each item, maximum 35
McPherson et al. [14] Sickle cell disease 5 NR NR Variable, mostly 3-point Likert Scale (knowledge section worth 4 points) Patient NR (high score = more ready for transfer)
TRQ [15] HIV 6 21 Knowledge of disease & transition process NR Patient 1point each, 2 for disease knowledge
  1. CF, cystic fibrosis; T1DM, type 1 diabetes mellitus; HIV, human immunodeficiency virus; NR, not reported.