TOOL | TOOL | ||||||
---|---|---|---|---|---|---|---|
Disease-specificity | Number of domains | Number of questions | What questions are asking? | Nature of responses | Reporters | Calculation of scores | |
TRAQ [4] | Chronic diseases | 2 | 33 | Skills | 5-point Likert scale (Stages of change model) | Patient | 1 point each |
UNC TRxANSITION [17] | Chronic diseases | 10 | 33 | Knowledge & self-management | Interview style (cross-referenced with medical records) | Patient | Each domain=1 Maximum 10 |
Self-Management Skills Assessment Guide [16] | Chronic diseases | 1 | 21 | Health-care awareness & decision-making | 5-point Likert scale | Patient & parent | 1-5 for each item, total score: 105 |
SCIS [8] | CF | Multiple | 44 | Independent knowledge/behaviour | Yes/no | Parent | 1point for Yes, 0 for No. Maximum 44 |
Readiness Questionnaire [9] | CF | 2 | 24 | Knowledge & behaviour | Multiple choice or short answer | Patient | 1point each, Maximum 24 |
RTQ [10] | Renal transplant | 3 | 22 | Involvement in behaviours & overall transition readiness | 4-point Likert scale (not/sometimes/often/always) | Patient & parent | 1-4 each question Maximum 48 |
TRS [2] | Liver transplant | 4 | Patient: 42. Parent: 36 | Skills, knowledge, behaviour | Likert scale & skill demonstration | Patient & parent | Items vary, Maximum 126 (parent: 108) |
RCBRS [13] | T1DM | 1 | 7 | Readiness to change responsibility | 5-point scale (Stages of change model) | Patient & parent | 1-5 each item, maximum 35 |
McPherson et al. [14] | Sickle cell disease | 5 | NR | NR | Variable, mostly 3-point Likert Scale (knowledge section worth 4 points) | Patient | NR (high score = more ready for transfer) |
TRQ [15] | HIV | 6 | 21 | Knowledge of disease & transition process | NR | Patient | 1point each, 2 for disease knowledge |