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Table 1 Design of transition readiness assessment tools

From: A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease

TOOL

TOOL

 

Disease-specificity

Number of domains

Number of questions

What questions are asking?

Nature of responses

Reporters

Calculation of scores

TRAQ [4]

Chronic diseases

2

33

Skills

5-point Likert scale (Stages of change model)

Patient

1 point each

UNC TRxANSITION [17]

Chronic diseases

10

33

Knowledge & self-management

Interview style (cross-referenced with medical records)

Patient

Each domain=1 Maximum 10

Self-Management Skills Assessment Guide [16]

Chronic diseases

1

21

Health-care awareness & decision-making

5-point Likert scale

Patient & parent

1-5 for each item, total score: 105

SCIS [8]

CF

Multiple

44

Independent knowledge/behaviour

Yes/no

Parent

1point for Yes, 0 for No. Maximum 44

Readiness Questionnaire [9]

CF

2

24

Knowledge & behaviour

Multiple choice or short answer

Patient

1point each, Maximum 24

RTQ [10]

Renal transplant

3

22

Involvement in behaviours & overall transition readiness

4-point Likert scale (not/sometimes/often/always)

Patient & parent

1-4 each question Maximum 48

TRS [2]

Liver transplant

4

Patient: 42. Parent: 36

Skills, knowledge, behaviour

Likert scale & skill demonstration

Patient & parent

Items vary, Maximum 126 (parent: 108)

RCBRS [13]

T1DM

1

7

Readiness to change responsibility

5-point scale (Stages of change model)

Patient & parent

1-5 each item, maximum 35

McPherson et al. [14]

Sickle cell disease

5

NR

NR

Variable, mostly 3-point Likert Scale (knowledge section worth 4 points)

Patient

NR (high score = more ready for transfer)

TRQ [15]

HIV

6

21

Knowledge of disease & transition process

NR

Patient

1point each, 2 for disease knowledge

  1. CF, cystic fibrosis; T1DM, type 1 diabetes mellitus; HIV, human immunodeficiency virus; NR, not reported.