Table 3 Details of included qualitative studies
Authors and year of publication | Name of study | Population and country | Study type | Proportion of study results included |
|---|---|---|---|---|
MA Ashby, RJ Kosky, HT Laver and EB Sims [12] 1991 | An enquiry into death and dying at the Adelaide Children's Hospital: a useful model? | Parents of children dying in hospital | Interviews with staff and parents, written submissions | Minimal data |
N = 6 | ||||
Australia | ||||
T Bellali, I Papazoglou and D Papadatou [22] 2007 | Empirically based recommendations to support parents facing the dilemma of paediatric cadaver organ donation. | Parents who were asked to donate their children’s organs | In-depth interviews with parents | Minimal data |
N = 22 | ||||
Greece | ||||
KL Bright, MB Huff and K Hollon [39] 2009 | A broken heart--the physician’s role: bereaved parents’ perceptions of interactions with physicians”. | Bereaved parents, children dying of any age, including adulthood, of any cause | Postal survey with open-ended question | 100% |
N = 137 | ||||
USA | ||||
SK Kuhn [27] 2008 | The process of parental bereavement following the violent death of a child. PhD Thesis | Parents of children (including young adults) dying in violent deaths | In –depth interviews with parents | Not applicable PhD Thesis |
N = 11 | ||||
USA | ||||
CM Lemmer [13] 1991 | Parental perceptions of caring following perinatal bereavement | Parents of infants dying in the neonatal period | In –depth interviews with parents | 25% |
N = 28 | ||||
USA | ||||
ME Macdonald, S Liben, FA Carnevale, JE Rennick, SL Wolf, D Meloche and SR Cohen [40] 2005 | Parental perspectives on hospital staff members’ acts of kindness and commemoration after a child’s death | Parents of children dying on paediatric intensive care units (PICU) | Field ethnography | 50% |
N = 12 | ||||
Canada | ||||
HE McHaffie, IA Laing and DJ Lloyd [29] 2001 | Follow up care of bereaved parents after treatment withdrawal from newborns | Parents of infants dying on neonatal intensive care (NICU) | In –depth interviews with parents | 100% |
N = 108 | ||||
United Kingdom | ||||
KL Meert, S Eggly, M Pollack, KJS Anand, J Zimmerman, J Carcillo, CJL Newth, JM Dean, DF Willson and C Nicholson [38] 2007 | Parents’ perspectives regarding a physician-parent conference after their child’s death in the pediatric intensive care unit | Parents of children dying on paediatric intensive care units (PICU) | In –depth interviews with parents (2007) | 100% |
N = 56 | ||||
USA | ||||
KL Meert, S Eggly, M Pollack, KJS Anand, J Zimmerman, J Carcillo, CJL Newth, JM Dean, DF Willson and C Nicholson [46] 2008 | Parents’ perspectives on physician-parent communication near the time of a child’s death in the pediatric intensive care unit | Secondary analysis of data from Meert, Eggly et al. [38] | Minimal Data | |
KL Meert, SH Briller, SM Schim, C Thurston and A Kabel [18] 2009 | Examining the needs of bereaved parents in the pediatric intensive care unit: a qualitative study. | Parents of children dying on paediatric intensive care units (PICU) | In –depth interviews and focus groups with parents | 75% |
N = 46 | ||||
USA | ||||
EC Meyer, MD Ritholz, JP Burns and RD Truog [15] 2006 | Improving the quality of end-of-life care in the pediatric intensive care unit: parents’ priorities and recommendations | Parents of children dying on paediatric intensive care units (PICU) | Open-ended postal questionnaire | Minimal Data |
N = 56 | ||||
USA | ||||
H Nordby and O Nohr [49] 2009 | Interactive emergency communication involving persons in crisis | Parents of SIDS infants | Semi-structured interviews with parents | Minimal Data |
N = 11 | ||||
Norway | ||||
EA Pector [30] 2004 | How bereaved multiple-birth parents cope with hospitalization, homecoming, disposition for deceased, and attachment to survivors. | Parents of multiple birth infants who die neonatally | Narrative email survey | 25% |
N = 70 | ||||
USA | ||||
DE Reilly, JC Huws, RP Hastings and FL Vaughan [14] 2008 | ‘When your child dies you don’t belong in that world anymore.’ - Experiences of mothers whose child with an intellectual disability has died | Bereaved mothers of children who had an intellectual disability (ID) | In-depth interviews with parents | 25% |
N = 9 | ||||
United Kingdom | ||||
AH Schaap, H Wolf, HW Bruinse, S Barkhof-van de Lande and PE Treffers [20] 1997 | Long-term impact of perinatal bereavement. Comparison of grief reactions after intrauterine versus neonatal death | Parents of infants dying perinatally | In-depth interviews with parents | Minimal Data |
N = 38 | ||||
The Netherlands | ||||
C Skene [26] 1998 | Individualised bereavement care | Parents of infants dying neonatally | Semi-structured interviews with bereaved mothers | Minimal Data |
N = 9 | ||||
United Kingdom | ||||
C Snowdon, DR Elbourne and J Garcia [44] 2004 | Perinatal pathology in the context of a clinical trial: attitudes of bereaved parents | Parents of infants dying on neonatal intensive care (NICU) | Semi-structured interviews with bereaved mothers | Minimal Data |
N = 18 | ||||
United Kingdom | ||||
P Swanson, J Brockbank, J Houghton, P Mountbatten, B Read, A Ross and J Woodward [21] 2002 | Panel discussion. Grief and bereavement with the loss of a twin | Mothers of multiple birth children dying at any time (including adulthood) | Semi-structured interviews with bereaved mothers | Minimal Data |
N = 66 | ||||
Australia | ||||
S Todd [55] 2007 | Silenced grief: living with the death of a child with intellectual disabilities | Bereaved parents of children who had an intellectual disability (ID) | In-depth interviews with parents | Minimal Data |
N = 13 | ||||
United Kingdom | ||||
A Wisten and K Zingmark [16] 2007 | Supportive needs of parents confronted with sudden cardiac death--a qualitative study | Parents of children suffering a sudden cardiac death (including adult deaths) | In-depth interviews with parents | 100% |
N = 28 | ||||
Sweden | ||||