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Table 2 Percentages of patients with CCCs classified by CCC v1 versus CCC v2 in KID 2009 and NEDS 2010

From: Pediatric complex chronic conditions classification system version 2: updated for ICD-10 and complex medical technology dependence and transplantation

CCC categories KID* (Weighted N = 7,337,017) NEDS (Weighted N = 29,741,986)
  CCC v1 CCC v2 % Change CCC v1 CCC v2 % change
Neurologic and neuromuscular 1.36 (1.35–1.37) 2.28 (2.26–2.30) 67.64% 0.31 (0.26–0.37) 0.52 (0.43–0.61) 67.74%
Cardiovascular 3.29 (2.27–3.30) 2.32 (2.30–2.33) –29.48% 0.43 (0.38–0.48) 0.48 (0.42–0.54) 11.63%
Respiratory 0.92 (0.91–0.93) 0.97 (0.96–0.98) 5.43% 0.08 (0.07–0.11) 0.13 (0.10–0.16) 62.50%
Renal and urologic 0.75 (0.74–0.76) 1.21 (1.12–1.22) 61.33% 0.08 (0.07–0.10) 0.13 (0.11–0.15) 62.50%
Gastrointestinal 0.62 (0.61–0.63) 2.02 (2.00–2.03) 225.81% 0.09 (0.08–0.10) 0.39 (0.30–0.48) 333.33%
Hematologic or immunologic 1.32 (1.30–1.33) 1.60 (1.58–1.61) 21.21% 0.34 (0.28–0.39) 0.41 (0.35–0.47) 20.59%
Metabolic 0.84 (0.83–0.85) 1.11 (1.10–1.12) 32.14 0.14 (0.12–0.16) 0.19 (0.16–0.21) 35.71%
Other congenital or genetic defect 1.64 (1.63–1.65) 1.64 (1.63–1.65) 0.00% 0.31 (0.27–0.36) 0.31 (0.27–0.36) 0.00%
Malignancy 2.10 (2.08–2.11) 1.64 (1.63–1.65) –21.91% 0.21 (0.17–0.25) 0.16 (0.12–0.20) -23.81%
Neonatal --- 1.14 (1.13–1.15) --- --- 0.03 (0.02–0.04) ---
Technology dependency --- 2.64 (2.62–2.65) --- --- 0.46 (0.35–0.58) ---
Transplantation --- 0.38 (0.37–0.38) --- --- 0.05 (0.04–0.07) ---
CCC (Any CCC) 10.56 (10.53–10.59) 11.57 (11.53–11.59) 9.56% 1.83 (1.60–2.06) 2.27 (1.97–2.72) 24.04%
  1. Legend: Data presented as percentage (% (95% CI) ). CCCv2 is classified using ICD-9. * Included all KID patients.