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Table 5 Expected impact of availability of QoL data

From: Quality of life assessment in preterm children: physicians’ knowledge, attitude, belief, practice - a KABP study

  n (%)* Obstetricians Neonatologists Paediatric neurologists p
n 1(%)* n 2(%)*
n 3(%)*
Impact on society      
• Provide information on the children’s outcome 72 (93.5) 19 (100) 43 (97.7) 10 (71.4) 0.004
• Make EP Children concern of society 64 (83.1) 16 (84.2) 36 (81.8) 12 (85.7) NS
Impact on the family      
• Change the way parents see their child’s outcome 59 (76.7) 14 (73.7) 34 (77.3) 11 (78.6) NS
• Improve support and help to the family 71 (92.2) 18 (94.7) 39 (88.6) 14 (100) NS
Medical impact      
• Provide overall knowledge of the outcome of EP Children 77 (100) 19 (100) 44 (100) 14 (100) NS
• Enhance the professional’s intuitive assessment 54 (75.0) 9 (56.3) 34 (81.0) 11 (78.6) NS
• Integrate the concept of QoL in care practices 66 (86.9) 16 (88.9) 36 (81.8) 14 (100) NS
• Give back the patient the feeling that he/she is central to the physician’s preoccupations 48 (65.7) 8 (50.0) 31 (72,1) 9 (64.3) NS
• Improve communication between the care team, the child and the family 66 (85.8) 18 (94.7) 34 (77.3) 14 (100) NS
• Give parents more precise information on the outcome of their child 64 (83.2) 19 (100) 34 (77.3) 11 (78.6) 0.046
• Rekindle ethical debate on neonatal resuscitation practices 68 (88.3) 17 (89.5) 39 (88.6) 12 (85.8) NS
• Makes no contribution to my practice 5 (6.6) 0 (0.0) 5 (11.4) 0 (0.0) NS
  1. *% of responders to the question.
  2. QoL, quality of life.
  3. EP Children, extremely preterm children.