Table 5 Expected impact of availability of QoL data
n (%)* | Obstetricians | Neonatologists | Paediatric neurologists | p | |
|---|---|---|---|---|---|
n 1(%)* | n 2(%)* | ||||
n 3(%)* | |||||
Impact on society | |||||
• Provide information on the children’s outcome | 72 (93.5) | 19 (100) | 43 (97.7) | 10 (71.4) | 0.004 |
• Make EP Children concern of society | 64 (83.1) | 16 (84.2) | 36 (81.8) | 12 (85.7) | NS |
Impact on the family | |||||
• Change the way parents see their child’s outcome | 59 (76.7) | 14 (73.7) | 34 (77.3) | 11 (78.6) | NS |
• Improve support and help to the family | 71 (92.2) | 18 (94.7) | 39 (88.6) | 14 (100) | NS |
Medical impact | |||||
• Provide overall knowledge of the outcome of EP Children | 77 (100) | 19 (100) | 44 (100) | 14 (100) | NS |
• Enhance the professional’s intuitive assessment | 54 (75.0) | 9 (56.3) | 34 (81.0) | 11 (78.6) | NS |
• Integrate the concept of QoL in care practices | 66 (86.9) | 16 (88.9) | 36 (81.8) | 14 (100) | NS |
• Give back the patient the feeling that he/she is central to the physician’s preoccupations | 48 (65.7) | 8 (50.0) | 31 (72,1) | 9 (64.3) | NS |
• Improve communication between the care team, the child and the family | 66 (85.8) | 18 (94.7) | 34 (77.3) | 14 (100) | NS |
• Give parents more precise information on the outcome of their child | 64 (83.2) | 19 (100) | 34 (77.3) | 11 (78.6) | 0.046 |
• Rekindle ethical debate on neonatal resuscitation practices | 68 (88.3) | 17 (89.5) | 39 (88.6) | 12 (85.8) | NS |
• Makes no contribution to my practice | 5 (6.6) | 0 (0.0) | 5 (11.4) | 0 (0.0) | NS |