Table 1 Parent, patient, and health care provider descriptive data

Mother n(%)

13 (87%)

Father n(%)

2 (13%)

Age mean(range)

38.5 (20.9-60.4 years)

Marital Status

Married/Common-law n(%)

11 (73%)

Separated/Divorced/Single n(%)

4 (27%)

Education

Secondary school

2

Diploma or certificate from trade, technical or vocational school, or business college

1

Diploma or certificate from community college, CEGEP, or nursing school

2

Bachelor or undergraduate degree, or teacher's college

6

Master's degree

4

Personal Income

No income

2

Less than $5000

1

$5,000-9,999

2

$10,000-14,999

1

$15,000-19,999

1

$20,000-39,999

3

$40,000-59,999

2

$60,000-80,000 or more

3

English first language n(%)

8 (53%)

# of years living in Canada

5 years or less

2 (13%)

6-10 years

2 (13%)

11-20 years

3 (20%)

20-40 years

2 (13%)

All of life

6 (40%)

Children/Youth n=15

Sex

Female

5

Male

10

Age mean (range)

6.2 (0.8-18.1 years)

# of diagnoses mean (range)

8.6 (5–14)

# of medications mean (range)

9.5 (1–20)

# of technologies mean (range)

2.6 (1–5)

# of ED visits in 2009 mean (range)

3.1 (0–17)

# of hospital admissions in 2009 mean (range)

2.5 (0–8)

# of clinic visits in 2009 mean (range)

17 (4–44)

# of hospital HCPs mean (range)

11.5 (4–18)

HCPs* (n=15)

Role

Nurse practitioner

5 (33%)

Respiratory Medicine

2

Palliative Care

1

Gastroenterology

1

General surgery

1

Paediatric Medicine physician

3 (20%)

Community physician

3 (20%)

ER physician

2 (13%)

ICU physician

2 (13%)