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Table 1 Items Included in the Shared Decision Making Score

From: Shared decision making and behavioral impairment: a national study among children with special health care needs

Shared Decision Making Items from the Medical Expenditure Panel Survey

Corresponding Component(s) of the Definition of Shared Decision Making (See Below).

Unweighted distribution of scores (n, %)1

  

1 (Never)

2 (Sometimes)

3 (Usually)

4 (Always)

If there were a choice between treatments, how often would your medical provider ask you to help make the decision?

1, 4

186 (8%)

277 (11%)

591 (24%)

1400 (57%)

Thinking about the types of medical, traditional and alternative treatments you are happy with, how often does your medical provider show respect for these treatments?

3

62 (3%)

191 (8%)

584 (24%)

1617 (65%)

In the last 12 months, how often did your child’s doctors or other health providers listen carefully to you?

2,3

19 (1%)

143 (6%)

541 (22%)

1751 (71%)

In the last 12 months, how often did your child’s doctors or other health providers explain things in a way that you could understand?

2, 3

19 (1%)

125 (5%)

460 (19%)

1850 (75%)

In the last 12 months, how often did your child’s doctors or other health providers show respect for what you had to say?

3,4

20 (1%)

124 (5%)

477 (19%)

1833 (75%)

In the last 12 months, how often did your child’s doctors or other health providers spend enough time with you?

2

53 (2%)

166 (7%)

559 (23%)

1676 (68%)

  

1 (No)

  

4 (Yes)

Does a medical person at your usual source of care present and explain all options to you?

2

144 (6%)

  

2310 (94%)

Components of Shared Decision Making

     

(1) Both the doctor and the patient are involved in the treatment decision-making process;

     

(2) Both share information with each other;

     

(3) Both take steps to participate in the decision-making process by expressing treatment preferences;

     

(4) Both the doctor and the patient ree on the treatment to implement

     
  1. 1Missing data (7-15% for each item) was imputed using multiple imputation.