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American Epilepsy Societya
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http://www.aesnet.org
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· Provides links to drug assistance programs, treatment guidelines, research publications
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Epilepsy Foundation
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http://www.epilepsyfoundation.org
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· IS fact sheets and awareness
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Epilepsy Information Service of Wake Forest Health Sciencesa
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http://www.wakehealth.edu/Neurosciences/Comprehensive-Epilepsy-Center/Epilepsy-Resources.htm
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· Epilepsy information toll free hotline, vigabatrin access assistance, support groups
|
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Epilepsy Therapy Project
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http://www.epilepsy.com
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· IS fact sheets
|
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HopefulCircle.org
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http://www.hopefulcircle.org
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· A rare diseases online community where patients, caregivers, healthcare professionals, and organizations can come for support and resources
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Infantile Spasms Awareness
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http://infantilespasmsinfo.org
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· IS education and information for pediatricians and parents
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Lundbeck, Inc
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http://www.lundbeckshare.com
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· Comprehensive vigabatrin resource for healthcare providers and patients/families; distribution access to vigabatrin
|
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National Institute of Neurological Disorders and Stroke (NINDS)
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http://www.infantilespasms.org
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· Infantile spasms information page with overview on IS
|
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National Organization for Rare Disorders (NORD)
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http://www.rarediseases.org
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· Patient Assistance Programs
|
|
· Online support community, ACTH access assistance
|
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Questcor Pharmaceuticals
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http://www.questcor.com
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· The Acthar Support & Access Program (ASAP) for prescriptions and reimbursement support related to ACTH treatment
|
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Tuberous Sclerosis Alliancea
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http://www.tsalliance.org
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· Fact sheets on IS in children with TSC
|
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· IS video (http://www.youtube.com/watch?v=35wRjuvg9MI)
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· Online discussion groups
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· Links to http://www.seizuretracker.com
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