Category | Codes | Papers |
---|---|---|
CHILD | Â | Â |
   Gender | How child's gender affects the situation | |
   Disease | Diagnosis and prognosis | |
 | Severity, symptoms, and child's quality of life | |
 | Episodic quality of illness and uncertainty | |
   Medical care | Type of technology or equipment | |
 | Frequency of treatments | |
   Age | Newborns, children, and adolescents | |
 | Transitioning to Adult Care | |
   Behavior | Cognitive and emotional function/expression | |
 | Functional ability/activity limitations | |
   Location | Home, hospital, or elsewhere | |
PARENT | Â | Â |
   Gender roles | How the roles of mothers and fathers differ | |
   Mental health | Emotions, quality of life, and stress | [14, 20, 31, 32, 34, 36–38, 40, 41, 43, 45, 51, 52, 55, 59, 61, 62] |
   Personality | Hardiness, self-esteem, and coping style | |
   Physical health | Sleep, immune function | |
   Knowledge | Medical and parenting skills and experience | |
 | Education level | |
   Social support | Availability of friends and family | |
FAMILY | Â | Â |
   Family structure | Family cohesion, including marital dynamics | |
 | Single parents | |
 | Step parents and foster parents | |
 | Siblings | |
   Finances | Employment, income, and expenses | |
 | Insurance and eligibility for services | |
SOCIETY | Â | Â |
   Minority status | Race, ethnicity, language, culture, and SES | |
   Geographic locale | Different regions, countries. Immobility. | |
   Attitudes and norms | Disability and disease in childhood | |
 | Parental responsibility and gender norms | |
   Health services | Availability of care facilities and providers | |
 | Awareness of available services | |
   Political system | Government policies and funding |