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Table 2 Primary and secondary outcome measures, measurement instruments, and informant.

From: A cognitive behavioral based group intervention for children with a chronic illness and their parents: a multicentre randomized controlled trial

Primary outcome measures

Measurements

Informant

Psychosocial functioning

Child Behaviour Checklist (CBCL) [22]

parent

 

Youth Self-Report (YSR) [23]

child (age11-18)

 

Strengths and Difficulties Questionnaire/4-18 (SDQ parent and child report) [24, 25]

parent & child (11-18)

Disease related coping skills

Questionnaire Op Koers for children (QOK-c, 18-items) [1]

child (8-18)

 

Questionnaire Op Koers for parents (QOK-p, 18-items) [1]

parent

Secondary outcome measures

Measurements

Informant

Quality of life

KIDSCREEN-27 [26]

child (8-18)

 

DISABKIDS Chronic Generic Measure - short form (DCGM-12) [27, 28]

child (8-18)

General coping skills

Adapted version of the Coping Strategies Inventory (CSI) [21]

child (8-18)

Self perception

Self-perception Self-Perception Profile for Children (CBSK) [29]

child (8-12)

 

Self-Perception Profile for Adolescents (CBSA) [30]

child (12-18)

Parental stress

Nijmegen Parenting Stress Index-Short (NPSIS) [31]

parent

Parent - child interaction

Family Interaction Task (FIT) is a 30-minute semi-structured observation¹ [34]

observation

 

Security Scale [32]

child (8-18)

Perceived vulnerability

Dutch version of the Parental Vulnerability Scale (8 items) [33]

parent