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Table 2 Primary and secondary outcome measures, measurement instruments, and informant.

From: A cognitive behavioral based group intervention for children with a chronic illness and their parents: a multicentre randomized controlled trial

Primary outcome measures Measurements Informant
Psychosocial functioning Child Behaviour Checklist (CBCL) [22] parent
  Youth Self-Report (YSR) [23] child (age11-18)
  Strengths and Difficulties Questionnaire/4-18 (SDQ parent and child report) [24, 25] parent & child (11-18)
Disease related coping skills Questionnaire Op Koers for children (QOK-c, 18-items) [1] child (8-18)
  Questionnaire Op Koers for parents (QOK-p, 18-items) [1] parent
Secondary outcome measures Measurements Informant
Quality of life KIDSCREEN-27 [26] child (8-18)
  DISABKIDS Chronic Generic Measure - short form (DCGM-12) [27, 28] child (8-18)
General coping skills Adapted version of the Coping Strategies Inventory (CSI) [21] child (8-18)
Self perception Self-perception Self-Perception Profile for Children (CBSK) [29] child (8-12)
  Self-Perception Profile for Adolescents (CBSA) [30] child (12-18)
Parental stress Nijmegen Parenting Stress Index-Short (NPSIS) [31] parent
Parent - child interaction Family Interaction Task (FIT) is a 30-minute semi-structured observation¹ [34] observation
  Security Scale [32] child (8-18)
Perceived vulnerability Dutch version of the Parental Vulnerability Scale (8 items) [33] parent