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Table 4 Categories reflecting experiences of living with celiac disease

From: Balancing health benefits and social sacrifices: A qualitative study of how screening-detected celiac disease impacts adolescents' quality of life

Quotations (Original text) Feelings and attitudes (Subcategories) Related actions (Subcategories) Experiences (Categories)
"When I found out that I have gluten intolerance, there wasn't anything to it. Of course you want to be able to eat what you want, but if you can't then you just can't." Girl, Narrative Not a disease, just food intolerance Not the worst condition to have Not being the only one Accept the fact Make the best out of it Not a big deal
"It should be out in the national newspaper, like one day they should have a bunch about gluten. So people understand." Boy, Focus group discussion Wish for increased awareness Dislike to be treated differently Want to be seen as normal Mobilize for change Educate others A fight for normalization
"My life became very different. They always have to make special food for me and I am scared that people think that I am being difficult." Girl, Narrative Feel alone Worry to be seen as a burden Feel like an outsider Trying to hide Compensate by being nice A lonely struggle
"I have totally quit the gluten-free food. My stomach problems have come back, but I feel better mentally. I can live a normal life now, except I have a little stomach pain." Girl, Narrative Hard to be different Diet hard to handle Not worth it Withdrawals from social contacts Take an active stand not to adhere Treatment not worth the price
  1. Quotations related to experiences of living with a screening-detected celiac disease diagnosis, illustrating the grounding of theoretically constructed subcategories reflecting feelings and attitudes, and related actions, which finally are grouped into categories reflecting experiences of living with celiac disease.