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Table 4 Categories reflecting experiences of living with celiac disease

From: Balancing health benefits and social sacrifices: A qualitative study of how screening-detected celiac disease impacts adolescents' quality of life

(Original text)
Feelings and attitudes
Related actions
"When I found out that I have gluten intolerance, there wasn't anything to it. Of course you want to be able to eat what you want, but if you can't then you just can't."
Girl, Narrative
Not a disease, just food intolerance
Not the worst condition to have
Not being the only one
Accept the fact
Make the best out of it
Not a big deal
"It should be out in the national newspaper, like one day they should have a bunch about gluten. So people understand."
Boy, Focus group discussion
Wish for increased awareness
Dislike to be treated differently
Want to be seen as normal
Mobilize for change
Educate others
A fight for normalization
"My life became very different. They always have to make special food for me and I am scared that people think that I am being difficult."
Girl, Narrative
Feel alone
Worry to be seen as a burden
Feel like an outsider
Trying to hide
Compensate by being nice
A lonely struggle
"I have totally quit the gluten-free food. My stomach problems have come back, but I feel better mentally. I can live a normal life now, except I have a little stomach pain."
Girl, Narrative
Hard to be different
Diet hard to handle
Not worth it
Withdrawals from social contacts
Take an active stand not to adhere
Treatment not worth the price
  1. Quotations related to experiences of living with a screening-detected celiac disease diagnosis, illustrating the grounding of theoretically constructed subcategories reflecting feelings and attitudes, and related actions, which finally are grouped into categories reflecting experiences of living with celiac disease.