Table 4 Clinical utility of the selected QOL measures for children with CP
Outcome Measure | Questionnaire completed by | Completion Time (minutes) | Cost | Outcome Measure Description |
|---|---|---|---|---|
C&CHQ | Caregiver/Parent | - | No cost for use of questionnaire. No manual available. | Designed to capture QOL improvements as a result of reduced tone post intrathecal baclofen (ITB) treatment |
CPCHILD | Caregiver/Parent (5-12 yrs) | 20-30 | No cost for questionnaire or manual. Registration requested. | A measure of health status and well- being for children with severe cerebral palsy, developed to measure effectiveness of interventions |
CP QOL-Child | Caregiver/Parent (4-12yrs) Child (9-12 yrs) | 15-25 | No cost for questionnaire or manual. Registration requested. | A condition specific outcome measure intended to gauge and assess QOL changes in children with cerebral palsy |
DISABKIDS | Caregiver/Parent (4-16 yrs) Child (4-16 yrs) | - | Non-funded & Government funded academic research*: free Large non-commercial organisation research and evaluation*: free Commercial studies*: 1000€ - 5000€ | Intended to measure HRQOL and assess burden of disease in children and adolescents |
PedsQL 3.0 | Caregiver/Parent (2-18 yrs) Child/Adolescent (5-18 yrs) | 5 | Non-funded academic: free Funded academic: $600US per study Large Non-Commercial: $1600US Large commercial $5600-$20,600US | Developed to assess HRQOL in a population of children and adolescents with cerebral palsy |