• Availability of accessible, age and gender appropriate epilepsy information on a variety of self-care and lifestyle management issues • Provision of information in a variety of types and age-appropriate formats likely to attract and engage young people • Awareness of all factors (e.g. biological etc) that act as facilitators and barriers to information exchange • Active facilitation by healthcare professionals of practical advice and information resources about daily lifestyle management - including sensitive topics • Introduce and facilitate information in clinical encounters at staged and regular intervals throughout teenage years • Active ongoing engagement and follow up by healthcare professionals with young people to ascertain recall and understanding of the information given • Age-appropriate and individually-tailored facilitation and discussion with young people to encourage them to ask questions • Actively building rapport by ensuring the same healthcare professionals at clinical encounters • Awareness that some healthcare professionals are themselves a barrier to positive information exchange as they are unable to relate to young people in age-appropriate ways • Provide opportunities for young people to talk openly without parental presence • Parents need consistent and ongoing epilepsy information, practical advice and high levels of support from healthcare professionals to enable their child to safe self-care and become independent • Awareness that some young people will need ongoing support and high levels of repeated information in order to take on some or all of their self-care • Engagement with young people to inform service delivery and organisation of care (e.g. length and frequency and clinic consultation and other modes of follow up). • Regular and meaningful review of the effectiveness of service provision and strategies to promote independence and self-care with involvement of young people as service users. • Epilepsy charities produce a wealth of information, which appears to be under utilised by healthcare professionals |