Reference | Study Design | Research Question | Setting Context | Main Results | Methods/Quality | Other notes |
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Baker et al 2005 [35] | Quantitative-Matched, controlled study by means of a number of questionnaires 6 questionnaires for all young people: 1. The Rosenberg self-esteem scale 2. The social avoidance and distress scale (SADS) 3. The Birleson Depression scale (BDS) 4. The Leyton Obsessional Inventory (LOI)- child version 5. The Children's Depression Inventory (CDI) 6. The Schonell Reading Test Additional 2 questionnaires for young people with epilepsy with epilepsy 7. The impact of epilepsy scale 8. Adolescents knowledge of epilepsy questionnaire n = 75 aged 12-18 years | To investigate the psychological and social impact of epilepsy on young people and to identify to what degree clinical and demographic variables and knowledge of epilepsy could influence psychological functioning | Epilepsy centres UK | Young people with epilepsy who had more epilepsy knowledge were less depressed p = 0.039 mean 7(5-9 confidence interval) they also had higher level self esteem p <0.026 mean 33(31-34 confidence interval) and low social anxiety p = 0.039 mean 7(5-9 confidence interval) Young people with epilepsy who had low Epilepsy Knowledge were more depressed p = 0.039 and had low self esteem p = 0.026 mean 11(9-14 confidence interval) and mean 28(27-31 confidence interval) respectively Mean (95% confidence interval) level of knowledge of epilepsy | Validated questionnaires Control group Participants from a specialist centre | Â |
Kongsaktrakul et al 2006 [43] | A Questionnaire conducted in the epilepsy clinic adopting the following sequence: The personal Data Form, the self-care behavioural scale, The Epilepsy Knowledge Scale, The Epilepsy Self-Efficacy Scale, the Family APGAR Questionnaire, and the Friend APGAR Questionnaire n = 121 aged 14-21 years | To determine a causal relationship among age, family income, support, epilepsy knowledge, epilepsy self-efficacy and self-care behaviour among young people with epilepsy | Clinics Thailand | Young people with epilepsy showed: Improved self-care behaviour p = <0.001 Positive direct effect self-efficacy p = <0.05 Family income positive effect p <0.05 CFI 0.99 | Cross sectional design Participants from specialist centres | Â |
Bell et al 2002 [46] | 20 page postal Questionnaire commissioned by Department of Health Clinical Standards Advisory Group (CSAG) about services for people with epilepsy n = 795 of which: (n = 13-16) 16-17 years old (n = 20-21) 18-19 years old (n = 29-30) | To establish whether women with epilepsy recall being given information on topics relating to childbearing | Home UK | 31% (5 out of 16) young girls aged 14-15 years received information about the interaction between their Anti-epileptic drug treatment and the oral Contraceptive pill. 20-35% from 14-17 years and 55%-65% aged In-between 16-19 years received information. Teratogenesis of AED | Data could have been better displayed for age ranges | Â |
Hirfanoglu et al 2009 [43] | Questionnaire 46 items for children 43 items for parents n = 220 children n = 77 parents | To evaluate knowledge, perception and attitude towards epilepsy and how this correlates with quality of life and stigma among children with epilepsy and their families | Clinics Turkey | Adolescents: increased epilepsy knowledge compared to younger children (p = 0.0001, r = 0.294) increased stigma (p = 0.0001, r = 0.256), depression p = 0.0001, r = 0.276) longer duration of seizures equated to negative attitude towards epilepsy p = 0.001, r = 0.223) Parents- 20% did not inform their children about epilepsy, 42% did not know what to do during a seizure | Researchers differentiated between children and adolescents and demonstrated statistical significance for adolescents in knowledge, stigma and depression | Â |